Dear Lillian ~
I also was striken with acute TM in January, l998. I was totally
paralyzed from above my waist on down. Today I am walking!!. I use a
wheelchair for long outings and use a cane for balance when I'm walking
short distances.
Please do not be discouraged Lillian. It sounds like your grandson has
come a long way in six months!!
What area of his spine is his lesion?
You have found a wonderful group of people who can give you support and
encouragement!! Please stay in touch with us. We will help you all we
can.
Whatever you do, never give up the hope that your grandson will walk
again. And, don't let him give up hope!!!!
~ Lynn ~
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From: Pigsanki(AT)aol.com
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Date: Mon, 13 Jul 1998 12:14:22 EDT
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Hi,
My grandson, age 15 became ill with Acute Transverse Myelitis in Jan. 1998
After a few weeks he began to feel movement in his legs and thighs. Little by
little he began to move his legs. He walks with a walker aaand arm crutches
and also with the aid of body braces. He has began to take a few steps with
the aid of his therapist and attentendent without the aid of his braces. It
his now six months and I am very discouraged.
No one has interest in the physcially handicapped. One of our local
newspapers who I wrote to requested a story aand had a reporter interview my
grandson at my house and then a phtographer at his physcially therapy.
When the article appeared it had very little to do about Eric and his
consition and needs. In fact there wasn't even his picture. The publisher or
editor gave no explanation.
I also find it difficult fooor him to find anyone woh has a similar issiablity
in our area.
But the main worry is if there are chances of his walking ever again.
thank you. Lillian Katz concerened Grandmother I am with him everyday
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