I am well over your grandson's age - closer to yours I am sure.
However, several of the members of the list have children with TM, or
became ill when they were teenagers. They should be able to give some
advice on helping him cope.
I doubt you can find many teenagers in your area with this disease,
since we are a pretty unique group. However, there should be some sort
of support group for teens with disabilities in your area - you might
check with the local hospitals. Hang in there - I think this whole
thing can be harder on the care givers than one the one with the disease
- Ann
> ----------
> From: Pigsanki(AT)aol.com[SMTP:Pigsanki(AT)aol.com]
> Sent: Monday, July 13, 1998 9:48 AM
> To: tmic-list(AT)eskimo.com
> Subject: Re:My grandson
>
> Hi,
> Please help! Grandson age 15 has atm since Jan. 1998. He is
> paralysised from
> the waist down. after 2 weeks he felt some small movements in his
> legs and
> thighs. Little by little he was able to move his legs quite well. He
> has
> therapy 3 times a week Walks with braces aand a walker or arm
> crutches.
> Just the other week he with the help of the therapists was able to
> stand
> without braces and take just a few steps holding the waker and of
> course with
> the aid of his therapists. Life hasn,t been esay, though his attitude
> is
> great. He needs more contact with similiar youths with disabilties
> which are
> difficult to find. I thought after 6 months he would be walking
> better and
> without the aidof his braces. Help! Does anyone have advice?
> I could not log on the chat room please help thank you I have just
> become a
> subscriber
>
> Lillian Katz
>