> From: dianeljohnson(AT)hotmail.com (diane johnson)
> To: tmic-list(AT)eskimo.com
>
> I just wanted to say hello and introduce myself to you all. I was
> diagnoised with TM approximately six ago. I started experiencing
> sensory problems in my feet and right hand, which soon moved throughout
> my body and within a week I was basically numb from the shoulders down.
> I also developed motor control difficulties in my legs and right hand,
> as well as an extremely painful constriction around my chest. An MRI
> showed a lesion at C-3 and I did a 5 day course of IV salumedrol in the
> hospital. I continue to have problems with fatigue, l'hermittes,
> bladder problems, etc., but I'm not as numb as I was and the motor
> control seems to be better. I know I've been lucky as my case is not as
> severe as many people, but I still look forward to learning as much as I
> can about this condition. And even though everyone around me has been
> very supportive, I look forward to talking with people who understand
> what this feels like. Thanks for listening.
>
Hello Diane,
Welcome to the list. You will find great support and vast amounts of info
here. I am sorry to here you are inflicted with this but am glad you found
us. I am semi-new here myself so I do not have the info that the others do,
but I can offer support. My motto is keep a positive mental attitude and that
will be half of the battle.
It is fantastic that you have a supportive family as that will help you.
I am affectd at the t5-6 level and am able to walk and perform my duties as a
mother. At times I get tired and am in pain always. I do not have the tight
banding that some of the others have and have no lesions at all. I have found
that exercise helps me tremendously. I walk and use a fitness flyer. I
started a vitamin therapy about 6 weeks ago. I take 1000 mg of v-c and a
multi vitamin as well as v-e and b-100. This seems to help with my energy
level as it became low at the onset. Also take Zoloft, although not for TM.
I take it to treat PMS and reduce my seizure activity. I have found that it
helps with eliminating some of the "fog" I get in due to TM. Currently take
50 mg of this med, but am going to increase it next week.
Please keep us up to date with all that goes on with you. Nothing here is
trivial!!
Take good care of yourself,
Keep a Positive mental attitude!!!!
Maria