Re: New Member needs advice!
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Thu, 02 Jul 1998 13:44:54 -0500
MichelleVM(AT)aol.com wrote:
>
> Hi to everyone out there. I had sent an e mail but I don't think it got
> through so I will try again. I am a new member of the tmic-list. I am also
> new to this diagnosis.
> I am a 38 year old athletic female who has been through a rough four weeks.
> My symtoms started with tingling or numbness in the groin area with forward
> flextion of the neck - I think it is called L'Hermittes. I just assumed it
> was that I was getting older and loosing some flexability, I took advil and
> ignored it.
> Two months later I woke up with major numbness (felt like a girdle was around
> my torso - extremely uncomfortable to touch) of my torso back and front, feet
> and hands. I have had MRI's, Xrays, blood work, a spinal tap, evoked
> potential testing; they found three lesions on my brain and two lesions on my
> cervical spinal area - whatever that means. My blood, spinal tap came back
> good. They put me on steroids oral and then IV transfusion therapy then oral
> again. I regained the majority of my feeling in my hands, torso, feet and
> legs and then one week after being off of them the weakness in my legs,
> tingling and numbness in my feet returned. I have full mobility and my
> bladder and bowl controls are in tact so far. I am being told to just give it
> time, it may go away completely or it may leave some perminent sensory damage.
> If it gos away and then return, it may be diagnost as MS. I of course am
> asking for steroid treatment again because I am afraid if I just "give it
> time", I may have perminent damage. Can anyone help me out or mak some
> recommendations for preventative treatment or alternative options for
> treatment. Thanks, MichelleHi Michelle, Joellen here. With Multiple lesions on brain and spinal
cord it sounds like it's more probably MS but don't quote me on that!
Right now about the only thing they have to help prevent or lessen
damage is the steroid treatments I don't know of anything else out
there, but I'm not an expert on that. Joellen