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Christine, My son is 14 and was struck with TM exactly one year ago this
month. He is paralyzed from the chest down or T5-6 area. Presently he is
taking Grape Seed extract, and Red wine Extract and Pine Bark extract will
be added to this next week. I was considering giving him St. John's Wort
for fatigue, but after some discussion from this list have decided to wait
to see how the other things are doing. You will learn alot from the people
on this list, I have. They are always willing to help. I hope Claire is
dealing alright with this new way of life, you too, I know how hard it is
to watch your child lead a very different life than they expected to.
write me anytime I check the list everyday, don't always write anything
back but am always around. Judi
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> From: Christine Coxby way of Transverse Myelitis Association
<myelitis(AT)myelitis.org> <ccox(AT)castanoplc.com>
> To: tmic-list(AT)eskimo.com
> Subject: kids
> Date: Wednesday, June 17, 1998 3:19 PM
>
> I would be interested to recieve mail from anyone with a child under
> 15 with transverse myelitis. My daughter, Claire, is 10 and was
> struck with acute tm at the end of October. It left her paralyzed
> from the waist down. She has had no return of feeling, and has no
> independent bowel or bladder function. I am interested in learning
> about vitamin therapy, if any, and also about immunology. Has anyone
> had any experience with an immunologist, since this is an autoimmune
> disease? Also, fatigue. How can that be counteracted? She will be
> in a very academically competitive school in the fall, and I am
> concerned about her 'keeping up'. I am also concerened about pre-
> adolescent sexuality in children with this sort of condition. Also,
> what about RFO's? Any insight?
>
> Christine Cox
>
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Christine, My son is 14 and was =
struck with TM exactly one year ago this month. He is paralyzed from the =
chest down or T5-6 area. Presently he is taking Grape Seed extract, and =
Red wine Extract and Pine Bark extract will be added to this next week. =
I was considering giving him St. John's Wort for fatigue, but after some =
discussion from this list have decided to wait to see how the other =
things are doing. You will learn alot from the people on this =
list, I have. They are always willing to help. I hope Claire is dealing =
alright with this new way of life, you too, I know how hard it is to =
watch your child lead a very different life than they expected to. =
write me anytime I check the list everyday, don't always write =
anything back but am always around. Judi
----------
> =
From: Christine Coxby way of Transverse Myelitis Association <myelitis(AT)myelitis.org> <ccox(AT)castanoplc.com>
> To: tmic-list(AT)eskimo.com
> Subject: kids
> Date: Wednesday, June =
17, 1998 3:19 PM
>
> I would be interested to recieve mail =
from anyone with a child under
> 15 with transverse myelitis. =
My daughter, Claire, is 10 and was
> struck with acute tm =
at the end of October. It left her paralyzed
> from the =
waist down. She has had no return of feeling, and has no
> =
independent bowel or bladder function. I am interested in learning =
> about vitamin therapy, if any, and also about immunology. =
Has anyone
> had any experience with an immunologist, since =
this is an autoimmune
> disease? Also, fatigue. How =
can that be counteracted? She will be
> in a very =
academically competitive school in the fall, and I am
> concerned =
about her 'keeping up'. I am also concerened about pre-
> =
adolescent sexuality in children with this sort of condition. =
Also,
> what about RFO's? Any insight?
> =
> Christine Cox
>