--->Hi everyone! >My name is Jenny. I was recently diagnosed with TM. I am 35 yrs old and I >have tons of KIDS! Not all mine but we have nine teens, and a little 2 month >old. If you haven't already guessed, I am a foster parent. >Well, getting on with it. You cannot imagine how happy I was to find this >list. For many months I have gone through so many different tests. I was >given a probable MS diagnosis, and tested for everything in the book. I am >certain you all have been down this road a time or two! My spinal was clear, >but the doctor said inconclusive. My MRI revealed a lesion on t-10. >I first experienced some numbness and tingling in my legs from the middle of >my back to the tips of my toes. I had severe excruciating pain in my >legs(which still remains to this day.) I was dizzy, and my balance was >severely impaired. I was incontinent, and within a two week period, I was >paralyzed from my hips to my toes. I underwent a series of tests, and during >that time there were periods that I was so weak that I could not move. I >could not lift my arms up, and it was difficult to raise my head. The fatigue >was so bad that I could sleep all day, and the littlest of energy that I had >to use tired me out completely. The tests I underwent revealed nothing. I had >a doctor come in my hospital room and tell me that there was nothing wrong >with me, and that I should be able to get up and walk out of the hospital. He >treated me so badly. He took a needle and scrapped the bottom of my feet so >hard my socks were soaked in blood. I did not realize this until later when >one of the nurses came into help me change. >I was never treated so barbarically in my entire life! >I came home from that hospital with a diagnosis of myopathy, and let us not >forget severe depression. I did go see another neurologist who ran some more >tests, and found that I did have a lesion on my spine. Then he came up with >the diagnosis of probable MS. I also had some blood tests done which revealed >that I had ebstein barre virus. That was over a year ago, and I still have >the virus, as well as some swelling in my spine. >I have regained the feeling in my legs to some degree. I walk with two >forearm crutches, and an AFO on my left leg, from my knee down. I have >different degrees of feeling in each leg. The fatigue is still bad and I get >very tired. >I was given steroids for a month. I am now taking Baclofen, and Neurontin. I >would like to know if anyone has this terrible pain in there legs as I do, and >what if anything can be done about it. Heat bothers me, and the cold bothers >me as well. >I am beginning to feel like such a hypocondreact!!! I apologize for this >being so long, but I just wanted you all to know how glad I am that you are >all here, and that I am finally able to talk with someone who understands! >Love and Hugs >to all >Jenny > I can completely sympathise with how you felt when you were told it was just severe depression this happened to me in February, I went up to a leading London hospital who just told me there was nothing wrong I lacked confidence and I should just get up and walk and sent me home. I have still not had a diagnosis as my doctor says that he can not send me to another hospital as this hospital has said there is nothing wrong, apart from they admit I do not have serve depression!!!!!!!!!!!!!!!!! I think they have given up. well I have everything like physio and a wheelchair but I would like a diagnosis
well hope all goes well
from another jenny