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In a message dated 6/11/98 9:37:34 PM Atlantic Daylight Time,
Jennapause(AT)aol.com writes:
> i everyone!
> My name is Jenny. I was recently diagnosed with TM. I am 35 yrs old and I
> have tons of KIDS! Not all mine but we have nine teens, and a little 2
> month
> old. If you haven't already guessed, I am a foster parent.
> Well, getting on with it. You cannot imagine how happy I was to find this
> list. For many months I have gone through so many different tests. I was
> given a probable MS diagnosis, and tested for everything in the book. I am
> certain you all have been down this road a time or two! My spinal was
clear,
>
> but the doctor said inconclusive. My MRI revealed a lesion on t-10.
> I first experienced some numbness and tingling in my legs from the middle
of
> my back to the tips of my toes. I had severe excruciating pain in my
> legs(which still remains to this day.) I was dizzy, and my balance was
> severely impaired. I was incontinent, and within a two week period, I was
> paralyzed from my hips to my toes. I underwent a series of tests, and
> during
> that time there were periods that I was so weak that I could not move. I
> could not lift my arms up, and it was difficult to raise my head. The
> fatigue
> was so bad that I could sleep all day, and the littlest of energy that I
had
> to use tired me out completely. The tests I underwent revealed nothing. I
> had
> a doctor come in my hospital room and tell me that there was nothing wrong
> with me, and that I should be able to get up and walk out of the hospital.
> He
> treated me so badly. He took a needle and scrapped the bottom of my feet
so
> hard my socks were soaked in blood. I did not realize this until later
when
> one of the nurses came into help me change.
> I was never treated so barbarically in my entire life!
> I came home from that hospital with a diagnosis of myopathy, and let us not
> forget severe depression. I did go see another neurologist who ran some
> more
> tests, and found that I did have a lesion on my spine. Then he came up
with
> the diagnosis of probable MS. I also had some blood tests done which
> revealed
> that I had ebstein barre virus. That was over a year ago, and I still have
> the virus, as well as some swelling in my spine.
> I have regained the feeling in my legs to some degree. I walk with two
> forearm crutches, and an AFO on my left leg, from my knee down. I have
> different degrees of feeling in each leg. The fatigue is still bad and I
> get
> very tired.
> I was given steroids for a month. I am now taking Baclofen, and Neurontin.
> I
> would like to know if anyone has this terrible pain in there legs as I do,
> and
> what if anything can be done about it. Heat bothers me, and the cold
> bothers
> me as well.
> I am beginning to feel like such a hypocondreact!!! I apologize for this
> being so long, but I just wanted you all to know how glad I am that you are
> all here, and tha
Jenny,
God Bless You for taking care of all the children. You are a saint! Please
don't say that you are a hypo. Get that word out of your vocabulary NOW! We
know our bodies better than anyone else and don't ever let anyone tell you any
different. Although I can relate to how you feel, I learned thru a very bad
experience that I will never let myself feel that way again. If the doc does
not want to acknowledge my health then off to a new one. I do not have time
for the bull anymore. For 7 years my first neuro kept telling me the side
affects I was having were in my head. She once told me, "well do you want
seizures or do you want side affects" Needless to say, 7 years later I was in
what is considered a semi-coma because the "side affects" I was feeling were
from too high of a dosage of the meds she had me on. The normal level is
about 8.0 and mine were 24.4 at the time of admittance to the ER. So much for
being a hypo. With this TM comes experience, growth and strength. Remember
that. Just try to work with the doc, and if it gets nowhere, as we have all
had those experiences, then interview more. Remember your time and health are
very important.
Keep you chin up, and a positive mental attiude!
Sincerely,
Maria
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From: Jennapause(AT)aol.com
Message-ID: <d49f00dc.35807688(AT)aol.com>
Date: Thu, 11 Jun 1998 20:29:59 EDT
To: tmic-list(AT)eskimo.com
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Hi everyone!
My name is Jenny. I was recently diagnosed with TM. I am 35 yrs old and I
have tons of KIDS! Not all mine but we have nine teens, and a little 2 month
old. If you haven't already guessed, I am a foster parent.
Well, getting on with it. You cannot imagine how happy I was to find this
list. For many months I have gone through so many different tests. I was
given a probable MS diagnosis, and tested for everything in the book. I am
certain you all have been down this road a time or two! My spinal was clear,
but the doctor said inconclusive. My MRI revealed a lesion on t-10.
I first experienced some numbness and tingling in my legs from the middle of
my back to the tips of my toes. I had severe excruciating pain in my
legs(which still remains to this day.) I was dizzy, and my balance was
severely impaired. I was incontinent, and within a two week period, I was
paralyzed from my hips to my toes. I underwent a series of tests, and during
that time there were periods that I was so weak that I could not move. I
could not lift my arms up, and it was difficult to raise my head. The fatigue
was so bad that I could sleep all day, and the littlest of energy that I had
to use tired me out completely. The tests I underwent revealed nothing. I had
a doctor come in my hospital room and tell me that there was nothing wrong
with me, and that I should be able to get up and walk out of the hospital. He
treated me so badly. He took a needle and scrapped the bottom of my feet so
hard my socks were soaked in blood. I did not realize this until later when
one of the nurses came into help me change.
I was never treated so barbarically in my entire life!
I came home from that hospital with a diagnosis of myopathy, and let us not
forget severe depression. I did go see another neurologist who ran some more
tests, and found that I did have a lesion on my spine. Then he came up with
the diagnosis of probable MS. I also had some blood tests done which revealed
that I had ebstein barre virus. That was over a year ago, and I still have
the virus, as well as some swelling in my spine.
I have regained the feeling in my legs to some degree. I walk with two
forearm crutches, and an AFO on my left leg, from my knee down. I have
different degrees of feeling in each leg. The fatigue is still bad and I get
very tired.
I was given steroids for a month. I am now taking Baclofen, and Neurontin. I
would like to know if anyone has this terrible pain in there legs as I do, and
what if anything can be done about it. Heat bothers me, and the cold bothers
me as well.
I am beginning to feel like such a hypocondreact!!! I apologize for this
being so long, but I just wanted you all to know how glad I am that you are
all here, and that I am finally able to talk with someone who understands!
Love and Hugs
to all
Jenny
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