Introduction
Jennapause(AT)aol.com
Thu, 11 Jun 1998 20:29:59 EDT
Hi everyone!
My name is Jenny. I was recently diagnosed with TM. I am 35 yrs old and I
have tons of KIDS! Not all mine but we have nine teens, and a little 2 month
old. If you haven't already guessed, I am a foster parent.
Well, getting on with it. You cannot imagine how happy I was to find this
list. For many months I have gone through so many different tests. I was
given a probable MS diagnosis, and tested for everything in the book. I am
certain you all have been down this road a time or two! My spinal was clear,
but the doctor said inconclusive. My MRI revealed a lesion on t-10.
I first experienced some numbness and tingling in my legs from the middle of
my back to the tips of my toes. I had severe excruciating pain in my
legs(which still remains to this day.) I was dizzy, and my balance was
severely impaired. I was incontinent, and within a two week period, I was
paralyzed from my hips to my toes. I underwent a series of tests, and during
that time there were periods that I was so weak that I could not move. I
could not lift my arms up, and it was difficult to raise my head. The fatigue
was so bad that I could sleep all day, and the littlest of energy that I had
to use tired me out completely. The tests I underwent revealed nothing. I had
a doctor come in my hospital room and tell me that there was nothing wrong
with me, and that I should be able to get up and walk out of the hospital. He
treated me so badly. He took a needle and scrapped the bottom of my feet so
hard my socks were soaked in blood. I did not realize this until later when
one of the nurses came into help me change.
I was never treated so barbarically in my entire life!
I came home from that hospital with a diagnosis of myopathy, and let us not
forget severe depression. I did go see another neurologist who ran some more
tests, and found that I did have a lesion on my spine. Then he came up with
the diagnosis of probable MS. I also had some blood tests done which revealed
that I had ebstein barre virus. That was over a year ago, and I still have
the virus, as well as some swelling in my spine.
I have regained the feeling in my legs to some degree. I walk with two
forearm crutches, and an AFO on my left leg, from my knee down. I have
different degrees of feeling in each leg. The fatigue is still bad and I get
very tired.
I was given steroids for a month. I am now taking Baclofen, and Neurontin. I
would like to know if anyone has this terrible pain in there legs as I do, and
what if anything can be done about it. Heat bothers me, and the cold bothers
me as well.
I am beginning to feel like such a hypocondreact!!! I apologize for this
being so long, but I just wanted you all to know how glad I am that you are
all here, and that I am finally able to talk with someone who understands!
Love and Hugs
to all
Jenny