RE: Hi! I'm New. . .

Lindstrom, Ann (Ann.Lindstrom(AT)octel.com)
Thu, 28 May 1998 15:55:03 -0700

Jane and Roger - Have you tried Nuerontin? I was on elavil until I read
about Nuerontin through this group. Like all the medications, it works
better for some people than for others. It has the least side effects
of all the stuff I tried, including tegretol. Some people feel drowsy
with it, but I haven't noticed anything close to the drowsiness I had
with elavil. Its an anti-seizure drug, and they believe it works for us
because it blocks some of the nerve impulses. It doesn't get rid of the
tingling/numbness for me completely, but it does decrease it
substantially ....Ann

> ----------
> From: Jane Dahl[SMTP:dahl.j(AT)ghc.org]
> Sent: Thursday, May 28, 1998 3:48 PM
> To: rogerp(AT)cyberspace.org
> Cc: tmic-list(AT)eskimo.com
> Subject: Re: Hi! I'm New. . .
>
>
>
> >>> Roger Pratt <rogerp(AT)cyberspace.org> 05/28 3:15 PM >>>
>
> I've had TM for 4 years and although my progress is much slower now
> that it was early on, I refuse to give up. You need to be thankful
> for any progress, however small and enjoy life to the fullest.
>
> **Thanks Roger. I try. It just seems to be a bit of a 'catch 22.'
> Living life to the fullest, at least in the physical sense, seems to
> put progress back some. And I ask the next question, not in a
> depressed state, but rather to get a realistic assessment. . .after 4
> years, do you feel that you will ever be completely well? How severe
> is your TM?**
>
> My numbness and pain seems to intensify when I get fatigued. But
> sometimes it is worse for no apparent reason.
>
> **Amen. Do you seem to get fatigued more easily, too?**
>
> On the advice of a neuologist I tried ibuprofen but it doesn't help
> much. I take Trivil at night (it lessens the pain and helps me
> sleep). I'm on Prozac, too, in the morning which helps me cope.
>
> **Ibuprofen doesn't really help me much either. That's why I thought
> I'd ask. The neurologist wants to prescribe amitriptyline, which is
> an antidepressant that has been, theoretically, shown to relieve
> spinal pain. Unfortunately, I tried the stuff once before and it
> caused all sorts of bad side effects like intense hot
> flashes/sweating, raised my blood pressure, made me agitated, etc.,
> etc., etc. It did not help me sleep, which it was supposed to do.**
>
> Hang in there.
> - Roger P :-)
>
> **I'm hanging! You too!
>
> Jane D.**
>
>