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Hi, my name is Kathy and I'm writing on behalf of my niece Hayley who
suffers with TM. She collasped on April 17 1996, 3 days before her 10th
birthday. There were no signs of anything until she collasped - she had
severe pains in her chest and back and felt sick, 10 minutes later her
left leg went numb and she fell and couldn't move, within 3 hours she
was totally paralized from her chest down (T4).She did lose movement and
feeling in her arms but that came back, although not to full strength.
Hayley's lungs have been affected 75% also, though she has never used a
respirator. We can't understand why this has affected her breathing - is >>
Hi Kathy,
I just wanted to say that I will give you ideas along the way about
Hayley emotional well-being. What you,ve heard from Maria,Doc,Barbara(just a
short note)lol,Sharon Knie and Jan H. is excellent information. I too,
remember about a year ago of being in the "dark" about tm,and posting it to
the list. These people are the greatest! They continue to answer questions
because they care about people.There is plenty more list people just like
them. Sorry,that I didn't respond when I first read your letter. After I
finished reading it,my eyes became too watery to see to type. Take care.
Phil