Re: Hello and Help
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Sat, 28 Mar 1998 22:25:27 -0600
Kathy Barthman wrote:
>
> My name is Kathy and I have a dear friend who is in the hospital at
> the moment, paralyzed from her chest down. The doctors have run every
> test possible and each test has come back negative. They are telling
> her it is Transverse Myeopathy. about 48 hours ago, she had some
> tingling and then less than 2 hours later, she was paralyzed. At this
> moment the doctors are pumping her with steroids for 5 days and then
> they are talking rehablitation. We are all so shocked and stunned. She
> has a 5 yr old and a 7 month old at home and we know nothing about this
> Myelopathy. Could you please send me some information or at least let
> me know where I can go to find out more about all of this? Any help
> would be so very greatly appreciated. In the meantime, I will be busy
> reading through the posts to see what I can see. Thanks again.
>
> Kathy BarthmanHi Kathy, this is a great place to get help, support and suggestions as
to what has helped and what may help. Lots of Doctors are not upto date
on what it is like to deal with this. The fact that they have suggested
that it may be TM shows that they seem to be on their toes. It took
almost 2 months for them to diagnose me. I had spinal taps, myleograms,
xrays, cat scans, ultrasounds, blood tests by the dozens and finally an
MRI that showwed the lesion on my spinal cord. she may be lucky and
have a fast recovery. Tell her to work hard and try not to stress out
too much (although that's hard to not do) stress seems to aggrivate
symptoms sometimes. I'm sure we will be praying for her (I know I will)
Joellen