She's fine!?
D.C. Jones (jones(AT)tdl.com)
Thu, 26 Mar 1998 10:02:05 -0800
Went out and spent the whole day with my daughter and came in late
evening, too tired to boot the compute. I see many replays to my post
when I was so very scared and I will go through them in a bit.
I suppose I worried for nothing as she had a rash caused by the hot tub
"I guess" and not Shingles or the Chicken Pox which I am so very
grateful. Jessi's mother was angry at me for upsetting my daughter and
making her go to the doctor right away. She snipped at me and reminded
me that the doctor told her Jessi, has had the Chicken Pox and can't get
it again. "Why do they license these quacks?' But I didn't feel like
arguing I was just to emotionally tired and still am this morning.
I suppose that's the difference between myself [tm] and a healthy
person. I see the catastrophe that may, and they see the catastrophe
that is. I just can't express to her how important it is for me to be on
guard. And for Jessi to also know what the signs are. In my limited
thinking this is all I can do stop tm.
I know her chances of contracting tm is rare, but I'm sure it's in my
blood. I have two uncles, one dead, that had MS. The other now in bed
for life unable to even speak from a condition that I can best explain
as between MS and TM. [unknown!] Plus my grandfather who spent the last
three years of his life in bed for something no one knows anything
about. Strange how all my uncles, aunt, and father know nothing of why.
And yet I remember him in his bed and my grandmother taking care of him
"hand and foot" as everyone would say. He could get up they tell me, but
I never seen him leave bed. They the children of my grandfather, nine in
all, with the exception of my father and one uncle and one aunt are all
gone now and not one knows what Granddad had. It's obvious to me and my
ill uncle that it was undiagnosed spinal problem but no way to prove it.
So here I find my worst fear gripping me. When I see a sigh in my
daughter that may bring her closer to tm.
Statistics, statistics, all I have are statistics and no way of
determining if I need to worry or not, and I 'm afraid that's all we
have.
As I have seen twenty four doctors and been in hospital three times. The
best doctor I had the one that had the most experience with tm once told
me. "it's not hereditary but it does run in families". Now, just what
the hell was he telling me?
I'll continue to be paranoid, it's only one more fault in me, I can
carry it just fine. And I will continue to watch my daughter and "God
willing" any grand children my daughter may decide to present to me.
I thank each of you for your time, caring and understanding. And
especially for just listening to a frightened crippled. For I suppose
that is what I am.
I'm going back to bed, but I will get back up.
God bless you all
Davej