I concur 100%.
Roger
Sandy wrote:
> SandyK here
>
> I can't exactly remember why we are talking about changing the name of TM -
> does TM stand for something else? Sorry, I forgot....memory loss since my
> TM onset...
>
> These are my feelings: I would actually dislike the name being changed at
> all. For one, when I say TM to my family and friends or to others I am
> telling about my disorder, I dont' want to have to tell them, 'well, it
> used to be TM, but now its TMS or DTM'. Also, if the name changes now, then
> all the new people looking for TM in books or internet, just might wonder
> if this TMS is actually what they have, they might think TM and TMS are two
> different things. A note would have to be put near every reference to TM
> that the name has since been changed. Also, would the medical profession
> (neuro's) change their name for it too? It all just seems a little strange
> to me to be changing the name after so many years of being TM. On another
> note, personally I dont like the 'syndrome' word, as I feel it refers more
> to the mental profession and disorders - I guess like downs syndrome etc.
> (personal opinion). It would just seem strange to have a dog for 10 years
> named 'Buddy' and then decide that the name just doesn't describe him well
> enough so I change his name to 'Frisky With 2 White Feet'.
>
> Anyway, those are my feelings on the subject. Just thought I'd let them
> out. :)
>
> SandyK
>
> ----------
> > From: Aurore <aurore(AT)erols.com>
> > To: Linda922 <Linda922(AT)aol.com>; jones(AT)tdl.com
> > Cc: tmic-list(AT)eskimo.com
> > Subject: Re: TM, the term
> > Date: Thursday, March 19, 1998 5:01 PM
> >
> >
> >
> > If the folks weren't coming to Washington to lobby, the whole thing would
> > never have come up. Unfortunately, though, DC is the land of the
> > abbreviation--MS, IRS, INS, GAO, GOP, etc. There are initials flying
> > everywhere. We will be abbreviated, so it becomes a question of choosing
> > ourselves rather than being stuck with initials that bring us the wrong
> kind
> > of attention.
> >
> > If it applied to everyone, DTM would work, but not everyone has
> > demyelination. No one should be left out.
> >
> > Aurore
> >
> > >Just my 2 cents, but IMHO, the words *Transverse Myelitis* should be
> used
> > and
> > >that's it. The more it's read, the more it's said, it will sink in.
> > >
> > >I know if I talk about it to anyone, I always say "transverse myelitis."
> I
> > >only use TM on this list and when writing to friends that know me and
> what
> > it
> > >is and what I've been thru. I never *say* TM.
> > >
> > >Linda
> > >
> > >
> > >
> > >
> > >In a message dated 3/19/98 11:44:53 AM, aurore(AT)erols.com writes:
> > >
> > >>So what would you use instead of syndrome? As hard as it is to explain
> > >>our
> > >>
> > >>individual cases of TM, think how complicated it is to explain all of
> our
> > >>
> > >>cases and why NONE of us had identical onset, identical effects, or
> > >>
> > >>identical recoveries. The neurologists will leave no doubt that this
> is
> > >>a
> > >>
> > >>physical problem and not a thought up illness, if that's what you're
> > worried
> > >>
> > >>about. TM/transcendental meditation has a larger presence in D.C.
> because
> > >>
> > >>it and organizations like it lobby for stuff, too. If we use ATM, we
> > leave
> > >>
> > >>out too many people, me included, who had different onsets from yours.
> > >>
> > >>Besides, I don't want to be equated with an unfeeling machine--it's
> very
> > >>
> > >>important that these folks on Capital Hill understand our human
> suffering
> > >>
> > >>and not make a joke about us being cash dispensers (very far from the
> > truth
> > >>
> > >>for those of us unable to work). We need money for research and often
> > just
> > >>
> > >>to survive; we don't have all the money we need like an ATM.
> > >>
> > >>
> > >>
> > >>Aurore
> > >>
> > >>
> > >>
> > >>>Hello:
> > >>
> > >>>I'm not quite sure 'syndrome' would be a wise choice. Syndrome sounds
> to
> > >>
> > >>>wishy-washy, like a mental condition. For instance people that are or
> > >>
> > >>>believe themselves to be chemically intolerant. They too use the
> > >>
> > >>>syndrome sometimes in describing there, whatever?
> > >>
> > >>>
> > >>
> > >>>In d but a few had ever heard of it. And none have ever mentioned
> > >>
> > >>>Transcendental Meditation. On the other hand if I mention atm and I am
> > >>
> > >>>atm, they almost always mention a cash machine.
> > >>
> > >>>For what it's worth TM works just fine. .
> > >>
> > >>>
> > >>
> > >>>Best regards; Davej
> > >>
> > >
> > >