If it applied to everyone, DTM would work, but not everyone has
demyelination. No one should be left out.
Aurore
>Just my 2 cents, but IMHO, the words *Transverse Myelitis* should be used
and
>that's it. The more it's read, the more it's said, it will sink in.
>
>I know if I talk about it to anyone, I always say "transverse myelitis." I
>only use TM on this list and when writing to friends that know me and what
it
>is and what I've been thru. I never *say* TM.
>
>Linda
>
>
>
>
>In a message dated 3/19/98 11:44:53 AM, aurore(AT)erols.com writes:
>
>>So what would you use instead of syndrome? As hard as it is to explain
>>our
>>
>>individual cases of TM, think how complicated it is to explain all of our
>>
>>cases and why NONE of us had identical onset, identical effects, or
>>
>>identical recoveries. The neurologists will leave no doubt that this is
>>a
>>
>>physical problem and not a thought up illness, if that's what you're
worried
>>
>>about. TM/transcendental meditation has a larger presence in D.C. because
>>
>>it and organizations like it lobby for stuff, too. If we use ATM, we
leave
>>
>>out too many people, me included, who had different onsets from yours.
>>
>>Besides, I don't want to be equated with an unfeeling machine--it's very
>>
>>important that these folks on Capital Hill understand our human suffering
>>
>>and not make a joke about us being cash dispensers (very far from the
truth
>>
>>for those of us unable to work). We need money for research and often
just
>>
>>to survive; we don't have all the money we need like an ATM.
>>
>>
>>
>>Aurore
>>
>>
>>
>>>Hello:
>>
>>>I'm not quite sure 'syndrome' would be a wise choice. Syndrome sounds to
>>
>>>wishy-washy, like a mental condition. For instance people that are or
>>
>>>believe themselves to be chemically intolerant. They too use the
>>
>>>syndrome sometimes in describing there, whatever?
>>
>>>
>>
>>>In d but a few had ever heard of it. And none have ever mentioned
>>
>>>Transcendental Meditation. On the other hand if I mention atm and I am
>>
>>>atm, they almost always mention a cash machine.
>>
>>>For what it's worth TM works just fine. .
>>
>>>
>>
>>>Best regards; Davej
>>
>
>