Re: Clarify a misunderstanding.

Rowton7244 (Rowton7244(AT)aol.com)
Fri, 6 Mar 1998 03:25:54 EST

In a message dated 98-03-05 20:55:19 EST, you write:
Dear Dave,
Have you written or called your congressman or senator? Have you read;
New Hopes, New Dreams, TIME, August 26, 1996? Here is a quote form this
piece," "Relatively little money has been spent on spinal-cord research
because the small number of patients (around 11, 00 a year) does not excite
pharmaceutical companies.
And the therapies may not involve drugs anyway. Few Nobel Prizes have gone to
this research, and scientist have not been drawn to it." later in the piece,
pg. 42 " We get things done in this country based on incentives, not just the
goodness of our heart." I respect your opinion, and I appreciate the candor
of this group. In conjunction with Phil's research we should all fill out the
confidential survey available on the Transverse Myelitis Assoc. I will do
so, I simply have not because it was not easy, mainly because I was unaware
of this survey, nor am I very adiort re the 'trasping' ignorantly about these
websights. This ignorance was brought about by a feverish attempt to find
some HOPE and interaction with others dealing with this horrible illness. I
deeply admire Phil and Debbie (TM Assoc.) along with Jim, who by all accounts
is the most remarkable human I know of.

<< I have stayed on the side lines about this survey but I got to come in
now. I find the survey redundant and a waste of time "Sorry Thread" But
the answers will not be of much use. You could just as well included
"How many had popcorn that week" (this reply to your comments are done with
deep respect for both of our 1rst ammendment rights). I may have eaten
popcorn , in a cave, while remaining under enough stress to make remain in
this cave, until a long lost family member arrived to tell me 'of my family
history' and request that I move to a warmer climate. While in this cave I
may have come incontact with the chemicals needed to keep cave men from
returning. (God know the press and politics have made me fearful that this
mentality of cavemen may be returning.) This by the way is ment to be a vast
extreme and in no way reflects my feeling for Phil's great devotion to this
group and commitment to the cure.
Here is something writen by Theodore Roosevelt, that hangs in my office;

The credit belongs........
to the man who is actually in the arena,
who strives valiantly;....
who
knows the great devotions,.....and
spends himself in a worthy...cause,
who at the best,
knows the triumph of high achievements;
and who, at the worst, if he fails,......at least
fails while daring greatly,
so that his place shall never be with those cold,
and timid souls...
who neither know victory nor defeat.

Lastly there is nothing more comforting to me than the unfettered access to
the information, opinions and solutions gleened on this list. Dave, thanks
again for reminding me to be glad we have free speech.
Kindest regards,
Beth


above reply is in regard to;
.<<All the questions have been asked and
answered years ago. All have been gone over by the medical field. There
are similarities [I even been told by the head spinal doctor at a
Stanford Med affiliated hospital that "MS is not hereditary but it does
run in families" just mull that over for a second?] but no true medical
use has come from these surveys other than to warn someone there in a
risk group.
And as far as some ones reply to you as being idiopathic, that is your
perspective. It is not idiopathic to me. The only thing that is truly
idiopathic here is TM.

Regards; Davej>>




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