>
>tmic-digest Digest Volume 98 : Issue 13
>
>Today's Topics:
> Fwd: try this out, it really works!]
> Re: Tranverse Mylitis...what, when and where?
> Re: Tranverse Mylitis...what, when and where?
> transverse myelitis
> transverse myelitis
> Re: tmic-digest Digest V98 #12
> Re: transverse myelitis
> Re: Tranverse Mylitis...what, when and where?
>
>Hi Beth,
>First, i think it's a great idea and it will put things in order.
> So i'm Netta, 18 years old, and i've had TM for 3 years and 3 months
>now.
>It came "out of the blue", which means i was totally healthy before; no
>flu, no flu-like, nothing i took or ate, etc.
>My damage was at first in c-5 and after a few days c-3.
>Today i'm not ventilated anymore and the damage is in c-4 in the right
>side and c-5 in the left.
>
>I hope this will help!
>
>Netta
>
>Hi Beth, Jan H. here. Glad you suggested this--
>
>I was diagnosed with TM on April 29, 1996. The
>first symptom, loss of bladder/bowel occured on
>Friday, April 26 (actually Sat a.m.) and I lost use
>of my legs on the 28th.
>I was diagnosed the day that I went to the hospital
>at t8 level.
>I had had pneumonia for first three weeks of April and
>that was given as the likely source of my illness. Plus
>the fact that my immune system was somewhat com-
>promised by ten year use of steroids for a skin problem.
>I am 58 today and have regained most of my prior abilities.
>The bladder/bowel is not normal but better than when I had
>to self-cath.
>Ido suffer the burning/aching legs and lower back but not
>so much that I can't go on with life.
>Thanks, Jan H
>
>To Bob from Houston
> Thankyou for your replyand information,and i will try to talk to
the
>T.M.As founder (iam not to sure who that is yet as we are very new to the
>net!) We are from the north-west of England,a place called Bolton,near
>Manchester .Have you been to England ?Not got your email address hope this
>gets to you !
> Thanks again Linda
>
>Hello Beth,
>I haven't written for a while just been watching for some reason. I was
>dx with TM Oct. '95. I had back surgery for rupured disc Sept. 28 '95
>within two days could not us my right leg then by third day was
>paralised at t4 level. All the usual test were ran and nothing was
>found to be wrong. My surgery was at level L4/5 and all was well there.
>I spent three weeks in rehab and was regaining ability to dress my self
>and to many things for myself like bowel care and self cath. Two days
>before going home I had a relaps and then my level was t2. I have not
>regained any of that day. I have many UTIs so now have a bag cath. I
>have nursing care and a provider. I have PT in my home three times a
>week. I spent many hours feeling sorry for myself and being scared and
>feeling so alone. Then I found this group, ask so many questions and
>got all the right answers. Now I greet each day with a smile, well most
>of the time, (we all have a few bad days) and I know God has a reason
>for this. I now have time to watch my grandchildren grow and smile each
>day. I will be 50 this year and I have alot to look forward to.
>
> Sharon Knie
>
>Hi gang!
> Just wondering if anyone has any tips or ways you've learned to "make
>it" out there in the working world in spite of your TM. I grew up with
>TM from the time I was 15 and I know that some of the ways I get by are
>not emotionally healthy. If I could stay home and venture out on my own
> schedule instead of doing the 9 to 5 day in the workplace, I imagine
>life would be a lot easier. I've recently returned to a physical
>therapist for an exercise regimen because my walk had deteriorated
>somewhat with 'age' or other unknown factors. The stretching helps
>quite a bit, but nothing touches the constant fatigue or dramatically
>affects my gait, at least not yet. I won't rehearse my story here, but
>I believe it's still in the TMIC archives. I just wish I had had some
>help along the way to keep my thoughts about all this on track. Now, it
>seems, it's too late to re-think and re-live so much of my life that was
>damaged by TM. Any thoughts???
>
>Maureen
>
>In a message dated 98-01-30 18:30:47 EST, skknie(AT)webtv.net writes:
>
><< From: skknie(AT)webtv.net (Sharon Knie)
> I haven't written for a while just been watching for some reason. >>
>
>YOU ARE STILL AMONG US! I had wondered where the "other" Sharon was....
>
>Sharon M. (from Arizona)
>
>In a message dated 98-01-29 12:27:10 EST, Rowton7244(AT)AOL.COM writes:
>
><< Example- 1. What were the symtoms in your first onset of TM? - What are
>your
> symtoms now?
> 2. When- Did you get TM, (How long have you had TM?)
> 3. Where- On your spinal cord is the damage (mine is T-10)
> >>
>
>Thanks for all the responses re: "What, When, and Where"
>
>I am leaving to go back to work in New York, but when I return I will give
you
>the basics from the responses. Right now the information is very
>enlightening, heres a briefing on the responses so far.
>
>Most of the Symtoms always include bladder and colon problems. TM has
usually
>always done more damage to one side of the body than the oppossing side.
For
>those more unfortunate TM victims that experience paralysed areas, they
>usually had the attatck occure in the cervical area of the cord.
>Please remember I am a political consultant and the most uninformed medical
>demigraphical advisor. I am just trying to place the indivuals with the
same
>symtoms together so the communication can give us hope, help, and
solutions.
>
>To Gemma's mother,
>
>I think the archives can help you find another gentalmen who was most
helpful
>to me about 6 months ago from the UK. If I remember correctly his name was
>Paul, and he was retired military, most of all he was not only helpful but
he
>has a great sense of humor. Please give Gemma a hug from my daughter
(Brooke)
>and me all the way from Oklahoma City.
>Kindest regards,
>Beth
>
>