MY DAUGHTER GEMMA WAS STRUCK DOWN BY THIS WICKED AND CRUEL DISEASE
IN SEPT 93. SHE WAS SADLY ONLY 10 MONTHS OLD.GEMMA FIRST LOST THE USE OF BOTH
ARMS THEN RAPIDLY DETERIATED AND NEEDED VENTALATING.WITHIN 24 HRS OF THE FIRST
ONSET SHE WAS COMPLETLEY PARALYSED FROM THE NECK DOWN.SHE HAD ALL THE ROUTINE
TEST,INCLUDING M.R.I. LUMBAR PUNCTURE,SHE WAS DIAGNOSED AS A.T.M. AT C.2.
LEVEL.SHE SPENT 7 LONG WEEKS ON THE VENTALATER IN I.C.U ,BEFORE SHOWING ANY
SIGNS OF BREATHING UNAIDED.SHE WAS AT THIS POINT STILL PARALYSED,APART FROM A
SLIGHT SHAKE IN HER RIGHT LEG. WE WHERE THEN SENT HOME 1 WEEK LATER ,TO GET ON
WITH LIFE . THIS WAS THE MOST FRIGHTNING TIME FOR US ,OUR ONCE PERFECT BABY,
HAD BEEN SAVAGED BY THIS MONSTER ,WHICH HAD LEFT ONLY ABLE TO MOVE HER HEAD!
GEMMA IS FIVE NOW AND STILL HAS A LOT OF PROBLEMS. SHE HAS
ONLY BEEN WALKING OF A FASHION,FOR 6 MTHS ,AND STILL NEEDS 100% SUPERVISION
,SHE TIRES QUICKLY.GEMMAS ARMS ARE THE WORST AFFECTED ,HER LEFT ARM WITH
LIMITED USE ,HER RIGHT ARM IS STILL PARALYSED .GEMMA HAS ALSO PROBLEMS WITH
HER BLADDER, LOTS OF INFECTINS AND IS STILL IN NAPPIES .
NO-ONE INVOLED IN GEMMAS CARE SEEMS TO KNOW MUCH ABOUT T.M.
INFACT WE HAVE HAD NO EMOTIONAL SUPPORT AT ALL ,WE HAVE NEVER BEEN ABLE TO
TALK TO ANYBODY ELSE WHO HAS BEEN DEALT THE SAME CARDS.
IAM SO GLAD I HAVE FOUND THE INTER-NET, I HAVE LEARNT MORE
IN THE LAST WEEK READING ARTICLES AND LETTERS FROM OTHER T.M SUFFERERS THAN IN
THE LAST 4 YEARS WE HAVE HAD TO LIVE WITH IT.ITS NOW JUST KNOWING WE ARE NOT
ALONE !!!!!
I WOULD LOVE TO HEAR FROM ANYONE AND REALLY LOOK FORWARD TO
HEARING FROM YOU .OUR E-MAIL ADDRESS IS MYLESROB(AT)AOL.COM