Re: F.E.S. & Christopher Reeve
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Mon, 29 Dec 1997 17:18:10 -0600
Neti wrote:
>
> Dear Gunny,
> Thank you for ALL of the information!!!
>
> I would like to ask you one more question:
> Did you hear about a drug called "4-amino-pyridin"(or: "4AP")? It has
> been used in clinical tests within the framework of some research to
> find a cure to SCI.
> Will you ask your neurologist about it?
> Thanks,
> Neta.Hi Neta, Joellen here, I looked into 4AP, the tests that they are
currantly running are limited to TRAMATIC spinal cord injuries (ie.
accident cases where the cord is damaged or severed) they aren't open
to cases such as ours, but I guess if it works on their cords then they
may let it be used on our problems. The only other studies for 4AP that
I have seen cost money (over $6,000.00) for just the medication and you
have to pay for your trips and accomodations, it takes about 3 or more
trips there and back to do the study so it can get VERY expensive to do.