RE: Cytoxin

Ann.Lindstrom(AT)octel.com
Fri, 12 Dec 1997 07:28:21 -0800

SAM - I had cytoxin several years ago in conjunction with other drugs
(chemo) for breast cancer. I lost about 75% of my hair, but it grew
back better than ever - more body, and a nice wave. It also had, and
still has less gray. If you have nausea, the Dr. can perscribe a
medication that really knocks it out. The name escapes me now. It was
brand new in '93 (here anyway, they've had it in Europe for longer). It
was very expensive, so it helps if you have good insurance. My advice,
if you get nausea, don't try to tough it out - we have enough problems
without that too...... (Pot also works - depends on if you want the
hassle/risk of obtaining it).
Ann

> ----------
> From: Ellen Hertz[SMTP:eshertz(AT)access.digex.net]
> Sent: Thursday, December 11, 1997 6:34 PM
> To: tmic-list(AT)eskimo.com
> Subject: Re: Cytoxin
>
> At 12:04 AM 12/11/97 -0800, you wrote:
> >Hi all :-)
> >
> >It looks like I to will be having a course of cytoxin on a monthly
> basis,
> and I'm
> >curious as to what sort of effects and side effects it had for you
> that have
> >tried. Did you have much problem with nausea, hear loss, or any
> other
> problems?
> >
> >Thanks!
> >
> >Sam
> >
> Sam,
> I had a course of cytoxin on a monthly basis. I did lose quite a bit
> of hair. For the first few months it was okay. Pretty much near the
> end, I
> think it was about 6 months, I combed my hair and most of it came out
> in the comb. Not ALL of it as in totally bald, but it was sparse
> enough
> so that I wore a turban or a wig for a while. It grew back soon after
> the
> treatment. In fact it grew back curly and with body which I never had
> before.
> Now it's back to its original, limp state (sigh).
>
> I don't remember nausea. They stood by with IV Benadryl in case it was
> needed for nausea but it wasn't. They also gave me Lasex (sp?) at the
> end
> of each
> treatment to keep me urinating frequently for a while after which was
> a
> nuisance.
>
> At the time of the treatment I was 80% recovered (according to the
> doctors), with foot tingling and poor balance, but could walk and am
> still
> in that state. I have not had a recurrence since then. Of course I
> don't
> know what would have happened without it but the doctor seemed to feel
> strongly that I should have it so it's quite possible that it made the
> difference.
>
> It was about three years ago so my recollection may be somewhat
> clouded,
> but it is that there were only minor discomforts, not terrible ones
> :).
>
> Good luck.
> Ellen
>