Re: missed you
Ellen Hertz (eshertz(AT)access.digex.net)
Wed, 10 Dec 1997 19:21:26 -0500
At 07:48 AM 12/10/97 UT, you wrote:
>
>
>Hi, It's Julienne again.
>
>I've been on 4AP and another dose of Solumedrol. Whatever it is seems to be
>helping, I've gone from total paralysis to walking with crutches in 5
months -
>pretty good! I also did a 20 day course of Cytoxin back in June to try to
>Cool down the immune system...seems to be working so far. The latest from
the
>conferences from back east via my neurologist is that they recommend ongoing
>immune-suppressive drugs for those of us lucky enough to have recurring
>transverse myelitis. Will keep you posted as to results.
> Love,
> Julienne
Hi Julienne,
I had a course of Cytoxin once a month for about 6 months about 3
years ago. I haven't had any more occurrences since then. Hope it
works for you.
Ellen