I've been on 4AP and another dose of Solumedrol. Whatever it is seems to be
helping, I've gone from total paralysis to walking with crutches in 5 months -
pretty good! I also did a 20 day course of Cytoxin back in June to try to
Cool down the immune system...seems to be working so far. The latest from the
conferences from back east via my neurologist is that they recommend ongoing
immune-suppressive drugs for those of us lucky enough to have recurring
transverse myelitis. Will keep you posted as to results.
Love,
Julienne