RE: FIRST TIME CALLER

Paolella, Philip D (philip.d.paolella(AT)lmco.com)
Thu, 04 Dec 1997 13:32:45 -0500

THANKS FOR RESPONDING BARBRA,
I TALKED TO THE DOCTOR TODAY (THE ATTENDING DOC - PT) AND HE
COULDN'T TELL ME WHAT SHE WAS TESTED FOR, HE DIDN'T DO THEM.
IT AMAZES ME THAT THESE DOCs JUST GO THROUGH THE MOTIONS. IT SEEMS I
KNOW MORE BY READING THE TMA HOME PAGE. HE FINALLY AGREED TO TEST HER
FOR OTHER ILLNESSES THAT COULD BRING ON TM.
BOY, I THOUGHT I WAS GOING NUTS. NO ONE UNDERSTOOD ME WHEN I
ASKED OR MENTIONED IF MOM WAS EXPOSED TO HIV. ANYTIME YOU HAVE INVASIVE
SURGERY YOU ARE EXPOSED TO ALL SORTS OF GERMS AND VIRUSES LIKE HIV,
CHICKEN POX, MUMPS AND MORE. AND IN THIS DAY AND AGE, JUST TRY TO TELL
ME THE ENTIRE STAFF OF A HOSPITAL IS HIV FREE. THAT'S LIKE WORKING IN AN
ICE CREAM FACTORY AND NOT GETTING CHOCOLET ON YOUR SHIRT. BY THE WAY,
SHE DID HAVE A MYELOGRAM. NO PAIN THOUGH, SHE WAS PARALIZED FROM THE
CHEST DOWN. THEY ZAPPED HER WITH STERIODS AND NOW SHE'S IN PT.
SOUNDS LIKE WE HAVE A SIMILAR CASE. I FIGURE IT THIS WAY, IF I
CAN SCARE THE DOCs INTO THINKING THAT I'LL SUE IF I FIND OUT THAT THEY
CAUSED IT, MAYBE IT WILL MAKE THEM TRY HARDER.
PHIL P

> ----------
> From: JHarper33[SMTP:JHarper33(AT)aol.com]
> Reply To: tmic-list(AT)eskimo.com
> Sent: Thursday, December 04, 1997 1:05 PM
> To: tmic-list(AT)eskimo.com
> Subject: Re: FIRST TIME CALLER
>
> In a message dated 97-12-03 09:47:35 EST, you write:
>
> > I'M CONCERNED THOUGH, BECAUSE THE DOCTORS AT
> > THE HOSPITAL TEND TO BELIEVE THE TM CAME FROM A FLU SHOT SHE GOT IN
> LATE
> > SEPTEMBER. SHE ALSO RECEIVED A TETENUS SHOT IN EARLY OCTOBER. AND
> TO TOP
> > IT ALL OFF, SHE HAD A PACEMAKER INSTALLED LATE OCTOBER. IT WASN'T
> UNTIL
> > MID NOVEMBER THAT HER LEGS GOT WEAKER AND FINALLY LOST FEELING.
> > MY QUESTION IS, CAN A RAPID HEART BEAT BE AN ONSETTING SYMPTOM
> > OF TM. I'M WONDERING IF SHE WAS MISDIAGNOSED WHEN SHE GOT THE
> PACEMAKER.
> > THIS MAKES IT DIFFICULT BECAUSE WITH IT AN MRI CANNOT BE DONE. IF
> IT'S
> > NOT A SYMPTOM, THEN I SUSPECT THAT SHE WAS INFECTED DURING THE
> > OPERATION.
> > PLEASE HELP.
> > PHIL
> >
>
> Phil,
>
>
> Both flu shots and tetanus (sp?) shots have been suspected of causing
> TM. Most
> neurologists (at least that I've heard about) seem to think it comes
> from some
> stray virus. I've also wondered about the possibility of infection as
> I had a
> biopsy about a month before the onset of TM and wondered if some germ
> got into
> the bloodstream then. No one seems to know how to pin down the cause.
> One
> neurologist told me that even if a dr. had been there and tested for
> everything he could the day something started the wheels turning to
> result in
> TM, they still wouldn't be able to pinpoint the cause since there are
> so many
> variables and so many things we're exposed to. Since an MRI is out,
> what about
> a myelogram? No fun, but it is another way to look at the spine.
>
> Best wishes to you and your mom,
> Barbara
>