Re: Sleepless
RCookHook(AT)aol.com
Fri, 21 Nov 1997 12:19:35 -0500 (EST)
Re: Pain/burning
I must be a mssocist orr something. During the first months after onset, I
could feel nothing---I mean nothing. Then I felt the "Gorrilla Hug" as it
has been labled and I loved it---I WAS FEELING SOMETHING. I now have what
you all might be describing as shooting pains and burning sensations in my
back and right leg, with the left leg just feeling weird, and I have muscle
ache in my arms, with my feet feeling like they are swollen, even if they are
not. Truthfully, I try to enjoy these feelings, because I am feeling
something. I have learned to use my muscle spasms to move myself in bed and
assist me in getting in and out of the wheelchair. I can voluntarily create
them by doing certain movements, and use them to my benifit. They hurt when
I do it, but it is not unbearable, as compared to the pain I felt when I
first was hit with TM---that was something else, entirely---like a car had
just ran over me and left me for 'road kill'.
Am I not just feeling as much pain as you are describing?.
I am a T-3/4 primary, starting at T-1/2, have full feeling-sensory and
propreception on left side, and propreception and touch only on the left,
from the nipple line down on both sides. I cannot walk nor use either of my
legs and my torso is nearly worthless. Some controllable movement has
returned to the torso and my right leg, most return being within the last
year. It's been three years and nine months now since onset---who's
counting?..... I, too, worried constantly about a recurrence and especially
so when felt that these 'odd' feelings coupled with pain sensations I was
experienceing might be just that. Now I just kinda watch and wait, knowing
the chances are slim for any recurrence, and hope my name an't
"SLIM"...that's all I can do. Every day, I lQQk forward to see what new
sensations, weird feelings and burning/pain I will have, hoping they are
signs of improvement. At least it tells me I can still feel something, as I
said previously, and I never give up hope. I use no presriptions nor drugs,
but for lipitor for my cholesterol control and asprin, plus the usual vitamin
supplements....I wanna live long enough to see the cure to this stuff---I'm
54 years young.
Just babbling,
Bob from Houston