> ----------
> From: Adriene Stratouly[SMTP:astratouly(AT)mindspring.com]
> Sent: Sunday, November 09, 1997 1:41 PM
> To: tmic-list(AT)eskimo.com
> Subject: Re: Recent diagnosis
>
> My wife has been diagnosed with TM. It all started about one month
> after a
> treating edametriosis. Does anyone know of any corolation
>
>
>
>
>
>
> At 01:02 PM 11/9/97 -0600, you wrote:
> >At 10:48 AM 11/9/97 -0500, you wrote:
> >>My name is Jim Hoge and I am searching for information on TM. My 6
> month
> >>old niece has recently (last week) been diagnosed with this
> condition. She
> >>is in Children's Hospital in Pittsburgh, PA. She is paralyzed from
> the neck
> >>down. Her parents have received limited information thus far. What
> I would
> >>like to know is what can we expect? Will she recover from the
> paralysis
> >>after the spinal swelling goes away? What is typical treatment?
> She is
> >>presently receiving steroid treatments. What are the typical
> causes?
> >> Assuming she will recover from her present condition, what is the
> likelyhood
> >>that this can re-occur? What kind of pain might she be experiencing
> now?
> >> Any other information that you feel might be helpful would be
> appreciated,
> >>especially if I could pass it on to my brother and his wife as
> encouragement.
> >> Thanks for your consideration and time.
> >
> >Jim,
> >
> >Sorry to hear about your niece. Our son--also at six months of
> age--wound
> >up paralyzed from the waist down. He had had some innoculations about
> 1
> >month earlier including the oral polio vaccine. I continue to be
> suspicious
> >that these shots may have been related to the TM. The doctors claim
> >otherwise, but I don't find their arguments compelling.
> >
> >Galen spent five days in the hospital, was given many tests, but
> never any
> >kind of medication. He is now two years old. He recovered a lot, but
> did
> >not recover fully. The doctors say his problems are "nerve damage"
> related
> >to the TM. He can walk, but has a strange gait, and cannot walk very
> far.
> >The neurologist does not think he will progress much more; i.e. he
> will
> >walk in the future, but with noticeable problems.
> >
> >Throughout his whole ordeal, Galen never seemed to have any pain. He
> slept
> >normally and smiled constantly. He shows no signs now of ever having
> any
> >pain. We're thankful for that.
> >
> >I also have knowledge of a six month old girl in North Carolina who
> also
> >developed TM a month after having innoculations. I haven't called her
> >father in several months, but as I recall she was given steroids as
> >treatment. Her father when I spoke to him last seemed to think she
> was
> >going to recover fully.
> >
> >I wonder how many kids are out there with TM that we just don't know
> about?
> >
> >If you'd like to give my name and number to your relatives, feel
> free. I'd
> >also like to have their names and addresses. especially if your niece
> had
> >had innoculations prior to her diagnosis. I'd like to start a list of
> >parents of youngsters who've developed TM very early in life. Maybe
> we
> >parents can get some kind of support group going. I'm not aware that
> any
> >exists.
> >
> >Anyway, I hope your niece shows improvement. Thanks for leeting this
> list
> >know about her case. Aagain, if you could give me the name, address,
> and
> >phone # of your nieces parents, I'd appreciate it.
> >
> >Larry
> >
> >
> >************************************
> >Larry Hlavsa
> >Webmaster
> >Asian Pen Pals
> >Box 25193
> >Woodbury, MN 55125
> >PH 612-714-4434
> >FX 612-714-5005
> >EMAIL: hlavsa(AT)pioneerplanet.infi.net
> >************************************
> >
> >
>