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Amy Thropp (athropp(AT)mindspring.com)
Wed, 29 Oct 1997 09:03:26 -0500
At 06:48 AM 10/28/97 -0800, you wrote:
>tmic-digest Digest Volume 97 : Issue 227
>
>Today's Topics:
> Re: night pain
> Re: Hello from Arkansas
> Re: Hello from Arkansas
> Re: first months of tm
> Re: Dizziness/squigglies
> Re: Dizziness
> Re: first months of tm
> Re: brother/sister relation to TM
> Re: Dizziness
> Re: brother/sister relation to TM
> RE: Dizziness
> For those with typing problems..
> Re: Dizziness/squigglies
> Re: Dizziness/squigglies
>Date: Sun, 26 Oct 1997 08:43:55 -0500 (EST)
>From: OCONNOR444(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: night pain
>Message-ID: <971026084355_191944920(AT)mrin46.mail.aol.com>
>
>In a message dated 97-10-26 02:25:17 EST, you write:
>
><<
> This is Sharon K. from Tx panhandle. I have a question to post to
> anyone with simular discomfort. At night I am woke up with such pain in
> my legs that I could cry and do at times. I usually have little or on
> feeling, but the pain is very deep inside and rubbing them does no good
> at all. Is there any way to stop the pain either before it starts or
> after? I haven't had this for a while but now it's back again.
>
> Sharon >>
>Sharon, I taken Neurontin (Gabapentin) which works wonders for my nerve pain.
> Don't know if that will work for you but its worth mentioning.
>
>kevin o'c
>Date: Sun, 26 Oct 1997 13:05:20 -0500 (EST)
>From: SouthKen(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Hello from Arkansas
>Message-ID: <971026130225_-1494068872(AT)emout02.mail.aol.com>
>
>Hi
>
>I have the shock when I tilt my head forward - for those of you who have it,
>how long has it lasted? Meaning - numbers of weeks/months. . .
>
>It is a weird feeling, but doesn't seem like that big of a deal.
>
>Kelly
>Date: Sun, 26 Oct 1997 12:24:04 CST6CDT
>From: "Lynn Sittig" <LSittig(AT)mail.uca.edu>
>To: tmic-list(AT)eskimo.com
>Subject: Re: Hello from Arkansas
>Message-Id: <313477441A(AT)mail.uca.edu>
>Content-Type: text/plain; charset=US-ASCII
>Content-Transfer-Encoding: 7BIT
>
>Kelly:
>
>For me, it's been something I've experience since 1993 --- on and
>off, but mostly on. It occurs more when I am tired or drinking
>(alcohol). Like you said, it's weird and annoying, but not very
>serious. Whenever I make a conscious decision to see if it si
>still doing it --- it is still alive and well. But, I've gotten to
>the point where most days I don't notice it. Lynne
>
>> Hi
>>
>> I have the shock when I tilt my head forward - for those of you who have it,
>> how long has it lasted? Meaning - numbers of weeks/months. . .
>>
>> It is a weird feeling, but doesn't seem like that big of a deal.
>>
>> Kelly
>-----------------------
>Jeralynn Sittig
>306A Irby --- GPSS
>UCA
>Conway, AR 72035
>(501) 450-5581 (office)
>(501) 450-5185 (fax)
>Date: Sun, 26 Oct 1997 15:16:10 -0500 (EST)
>From: JHarper33(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: first months of tm
>Message-ID: <971026151610_2115600782(AT)mrin44.mail.aol.com>
>
>In a message dated 97-10-25 01:05:46 EDT, you write:
>
>> My 16 yr. old daughter was diagnosed with TM mid ///August. I am
>interested
>> if any other TM victims can share any of their historys during the first
>> three months. Did you get sensations back right after the Solumedrol IV
>or
>> did it take months to see any results?? Were any of you in Spinal
>> Shock--flaccid muscles, no reflexes??? We are wondering about how lon it
>> takes to get better or when you know it will not get much better. Give
>us
>> some hope if you can. Thanks for all replys.
>>
>> Reet
>
>I was not in spinal shock. Most of my improvement came within the first few
>months, although there has been slow but continued improvement over the past
>two years. One lady on the list some time back was continuing to have
>improvement after 5 years. But some seem to improve to a certain level and
>then stop; it really varies from person to person (one of the frustraing
>things about TM.) Some of my sensations have not come back at all. Most of
>the numbness has decreased but has not gone away completely and increases at
>times. I don't know for sure what my reflexes -- the ones the neurologist
>checks -- were at first, but I think they are all normal now. I don't know if
>this helps at all. :) You might check the archives of this list for more case
>histories at <A HREF="http://www.eskimo.com/~jlubin/disabled/tmic/">Transverse
> Myelitis Internet Club</A>. http://www.eskimo.com/~jlubin/disabled/tmic/
>
>Best wishes!
>Barbara
>Date: Sun, 26 Oct 1997 15:16:21 -0500 (EST)
>From: JHarper33(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Dizziness/squigglies
>Message-ID: <971026151620_848300686(AT)mrin46.mail.aol.com>
>
>In a message dated 97-10-24 17:14:06 EDT, you write:
>
>> I use to get little squigglies across my eyes also.
>> I was told my my eye Doctor its like the aura that seizure patients have.
>> When its occured with me I just went and laid down for a while and tried
>to
>> relax and in time it went away. Good luck Mary mlm ohm(AT)prodigy.net
>>
>
>What do you mean by "squigglies?" Something in your vision or blurry places
>or what? I get what I call "blips"--the area around my eyes feels strange and
>twitches or jerks sometimes and I get just a real brief disturbance in my
>vision. It's so fast I don't even know how to describe it. I've been assuming
>it was caused by the twitches/jerks around my eye rather than something from
>within the eye itself since I saw an opthamologist and he said the retina was
>fine.
>
>Barbara
>Date: Sun, 26 Oct 1997 15:18:15 -0500 (EST)
>From: JHarper33(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Dizziness
>Message-ID: <971026151622_1790413966(AT)emout03.mail.aol.com>
>
>In a message dated 97-10-24 22:20:48 EDT, you write:
>
>> I have a problem with vertigo that comes and goes. I get dizzy and lose my
>> balance on escalators. I also get dizzy when I lay on my left side. I
>> think
>> this is simply and inner-ear problem for me. What kind of dizziness do
>you
>> have?
>>
>> Sharon M. (from Arizona)
>>
>
>I also am off-balance at times. It seems especially worse when I'm standing
>still without holding on to or touching something else, but it happens other
>times, too. The physical therapist told me what that was due to, but I have
>forgotten what she said. She did have me do some exercises that seemed to
>help (standing, with her nearby to catch me if I fell, and leaning way over
>to one side, then the other, then backward, then forward, with my eyes
>closed, and then progressed to doing this with my eyes closed while standing
>on a pillow.) This has been since TM, but several years before TM I had
>trouble with extreme dizziness and trembling hands and was told it was due to
>hypoglycemia (low blood sugar). I think that probably is the case because,
>when I experience it, it is helped when I eat, and when I was at the dr. I
>felt so dizzy I felt like I was going to fall off the table, and he checked
>my blood sugar then, and it was low, even though I had eaten that morning. A
>lot of what I have read about low blood sugar seems to fit my case. But it
>was also around that time that I began having thyroid problems, and about six
>years later I was stricken with TM. I've been thinking of each problem as
>distinct and separate, but sometimes I've wondered if there is a connection.
>About two years before TM I had my third child and experienced numbness in
>two toes in one leg and it really frightened me. It was thought that since
>the baby was so big (12 lbs.!!), maybe at some point a nerve was affected. I
>don't remember how long it lasted -- maybe a few weeks. After TM, I asked the
>neurologist if there was a connection. He didn't think so. But I still
>wonder.
>
>Barbara
>Date: Sun, 26 Oct 1997 21:23:24 -0500
>From: "Jorge Londoņo" <JALondono(AT)worldnet.att.net>
>To: <tmic-list(AT)eskimo.com>
>Subject: Re: first months of tm
>Message-ID: <01bce27f$4dcf81a0$9e85440c(AT)default>
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: 7bit
>
>My mom was diagnosed with TM in May. But it all started Mothers Day, she
>said she felt numbness in her legs, the next thing we knew she was paralzed
>from the waist down. At the hospital she couldn't go to the bathroom. The
>doctors were baffled they had no idea what was the matter, they finally then
>figured out it was TM. After that she went for therapy and evrything, we
>admitted her to a rehabilitation hospital. Now she is wlaking SO MUCH
>BETTER but she still has pain at night, and some dizziness walking. But i
>assure you your daughter will get better it just takes TIME. hope to hear
>from you soon. with deepest thoughts
>
>
>
>Daniela
>Date: Sun, 26 Oct 1997 21:28:00 -0500
>From: "Jorge Londoņo" <JALondono(AT)worldnet.att.net>
>To: <tmic-list(AT)eskimo.com>
>Subject: Re: brother/sister relation to TM
>Message-ID: <01bce27f$f1ed0e60$9e85440c(AT)default>
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: 7bit
>
>My nephew still has to get his vaccination but i dont know if i want him to
>go through with it. what happens if he does get it i will be so upset.
>because my mom has it already and my nephew is only 15 months old im so
>scrared. hope your son is okay.
>Date: Sun, 26 Oct 1997 21:56:12 -0500 (EST)
>From: Marsden51(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Dizziness
>Message-ID: <971026215612_1377810185(AT)mrin42.mail.aol.com>
>
>Barbara:
>
>I used to have what I thought was low blood sugar--I would start shaking and
>break out in a sweat. it would get better if I drank a coke or ate
>something. I also have thyroid problems and take synthroid every day. I was
>diagnosed a year ago.
>
>Concerning the problem with balance, I went to Mass today and a funny thing
>happened. My friend, Shannon, who has MS sat next to me. Shannon is
>currently having a relapse and is using a walker. You know there is a lot of
>standing up in the Catholic Church. Well, at one point we were standing
>there and I realized that I was doing that forward/backward sway that I do
>when I am keeping my balance. I glanced over and Shannon was doing the same
>thing. I felt like laughing. Then a little later we were standing again and
>Shannon's legs gave out and she sat down. I sat down, too, and told Shannon
>"me, too." Then everyone else sat down in the church because we did---but it
>wasn't time to sit!!! It was like a wave--first the people right behind us
>sat down and it kept spreading until the entire church was sitting. LOL!!!!
> Shannon and I were both chuckling when we realized what had happened. The
>deacon was scowling at everyone for sitting down at the wrong time and I felt
>like laughing....
>
>Sharon M. (from Arizona)
>Date: Mon, 27 Oct 1997 09:45:01 -0500 (EST)
>From: CHSM(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: brother/sister relation to TM
>Message-ID: <971027094501_1014085993(AT)mrin43.mail.aol.com>
>
>My son is still improving daily, although every step has become smaller.
> Great improvements in the beginning, now they've slowed down but are still
>noticeable. From my research, it seems that the vaccines with the live
>viruses are the ones that might cause the problem. There are supposed to be
>synthetic vaccines available . You might want to look into the name of the
>drug and the manufacturer. I was told that there are alternatives for those
>who have ahad reactions. Good luck.
> My son had a tetanus shot and a Hepb vaccine one month before the onset of
>TM.
>Carol
>Date: Mon, 27 Oct 1997 09:09:08 -0800
>From: Ann.Lindstrom(AT)octel.com
>To: tmic-list(AT)eskimo.com
>Subject: RE: Dizziness
>Message-Id: <8F8696C54D14D111BD010080D87009D7350D95(AT)ex-campus3.corp.octel.com>
>Content-Type: text/plain
>
>Congratulations!
>
>> ----------
>> From: Marsden51(AT)aol.com[SMTP:Marsden51(AT)aol.com]
>> Sent: Friday, October 24, 1997 6:18 PM
>> To: tmic-list(AT)eskimo.com
>> Subject: Re: Dizziness
>>
>> In a message dated 97-10-24 01:07:02 EDT, you write:
>>
>> << my feeling is coming back - yippee! >>
>>
>> This is GREAT news Kelly!!!!!
>>
>> Sharon M. (from Arizona)
>>
>Date: Mon, 27 Oct 1997 22:08:42 -0800
>From: Melville <luthyen(AT)erols.com>
>To: "'tmic-list(AT)eskimo.com'" <tmic-list(AT)eskimo.com>
>Subject: For those with typing problems..
>Message-ID: <01BCE325.21BC1280(AT)bsd-as7s18.erols.com>
>Content-Type: multipart/mixed; boundary="---- =_NextPart_000_01BCE325.21C53A40"
>
>For those of you who, like myself, have had TM affect your hands, you might
want to try a dictation program called NaturallySpeaking by Dragon Systems, Inc.
>
>With a numbness and pain in my hands, I found typing very difficult, as
well as frustrating. I was reduced to the Columbus method: find a key and
land on it. Since I do a fair bit of typing in writing short pieces and in
chatting with friends on the 'net, it was really becoming a problem. So my
friends bought me this program, and it has really been a help.
>
>A little bit of mouse work is required; It's a dictate, cut and paste type
of program, with a lot of voice commands to let you format and work in your
document. You have to train it to your speech patterns. You would be
surprised at what different words can sound like! Even so, I can
communicate faster and with less pain than I've been able to in months.
>
>It does require at least a Pentium 133, Windows 95 or Windows NT 4.0,
16-bit sound card or built-in audio system on a desktop including Sound
Blaster 16 or some Sound Blaster 32 or other cards; approximately 60 MB hard
disk; 32 megs RAM for Windows 95, 48 megs RAM for Windows NT, and a CD-ROM.
It comes with a microphone. I had to upgrade my computer to do it, but the
ability to communicate megs well worth it. There are other programs out
there; but my friends in the business recommended this one, and I've been
really happy with it.
>
>Be well: >
>Sam
>
>
>
>Attachment Converted: C:\PIPEPLUS\DOWNLOAD\tmic-digest Digest V97 #227
>Date: Tue, 28 Oct 1997 01:57:31 -0500 (EST)
>From: Gimpy0(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Dizziness/squigglies
>Message-ID: <971027225846_1600788439(AT)emout02.mail.aol.com>
>
>Hi, I have had TM for 2 years now. I started out with numbness on my left
>side, which progressed to my right side. I do not remember having any flu,
>and it took about 2 months before the progression of numbness stopped. I
>have improved but I find that improvement is slow. About 3 years ago I came
>down with Bells Palsey, which is also a viral infection, related???? At one
>time I saw a surgeon who tested me to eliminate the possibility of a tumor.
> He told me that usually patients do not improve much after 3-4 months.
>Date: Tue, 28 Oct 1997 09:46:20 -0500 (EST)
>From: FHargr3092(AT)aol.com
>To: tmic-list(AT)eskimo.com
>Subject: Re: Dizziness/squigglies
>Message-ID: <971028094336_-1795878795(AT)emout05.mail.aol.com>
>
>You are making a mistake if you believe that
>improvement is limited to 3-4 month period!!
>First of all you shouldn't allow that binding time-
>line to be in your thoughts! I've been 18 months
>with tm and am still showing signs of improvement
>albeit small. My dr said each is different but not to
>put any thought of end of improvement timeline as
>improvement is ongoing. He said that early improve-
>ment is easier to see i.e. ability to stand, walk etc
>versus some feeling returning an inch at a time. He
>likened it to purchasing bananas-you get a bunch
>early on and then you just get one at a time.
>
>I didn't mean to be so fussy at the beginning of this
>response but I feel that a end of the line timeline put
>in your mind allows you to quit trying thus quit showing
>improvement. I don't like any thought that is negative-
>that would me give up!!!
>
>Keep on keeping on! Jan Hargrove
>