Re: first months of tm

JHarper33(AT)aol.com
Sun, 26 Oct 1997 15:16:10 -0500 (EST)

In a message dated 97-10-25 01:05:46 EDT, you write:

> My 16 yr. old daughter was diagnosed with TM mid ///August. I am
interested
> if any other TM victims can share any of their historys during the first
> three months. Did you get sensations back right after the Solumedrol IV
or
> did it take months to see any results?? Were any of you in Spinal
> Shock--flaccid muscles, no reflexes??? We are wondering about how lon it
> takes to get better or when you know it will not get much better. Give
us
> some hope if you can. Thanks for all replys.
>
> Reet

I was not in spinal shock. Most of my improvement came within the first few
months, although there has been slow but continued improvement over the past
two years. One lady on the list some time back was continuing to have
improvement after 5 years. But some seem to improve to a certain level and
then stop; it really varies from person to person (one of the frustraing
things about TM.) Some of my sensations have not come back at all. Most of
the numbness has decreased but has not gone away completely and increases at
times. I don't know for sure what my reflexes -- the ones the neurologist
checks -- were at first, but I think they are all normal now. I don't know if
this helps at all. :) You might check the archives of this list for more case
histories at <A HREF="http://www.eskimo.com/~jlubin/disabled/tmic/">Transverse
Myelitis Internet Club</A>. http://www.eskimo.com/~jlubin/disabled/tmic/

Best wishes!
Barbara