Re: first months of tm
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Sat, 25 Oct 1997 21:38:19 -0500
CourtneyBD(AT)aol.com wrote:
>
> My 16 yr. old daughter was diagnosed with TM mid ///August. I am interested
> if any other TM victims can share any of their historys during the first
> three months. Did you get sensations back right after the Solumedrol IV or
> did it take months to see any results?? Were any of you in Spinal
> Shock--flaccid muscles, no reflexes??? We are wondering about how lon it
> takes to get better or when you know it will not get much better. Give us
> some hope if you can. Thanks for all replys.
>
> ReetHi Reet, I've had TM for just over a year now, I've retained some
feeling in my legs (50% of normal) I can feel if someone is touching my
legs but can't tell when I am being stuck with pins, don't feel the pain
if I get an injection, can't feel if I've scraped my toes, but I do feel
like pins and needles in my feet and if touched in the wrong place while
lying down I have very strong spasms. It really makes it hard for the
nurse to change my catheter! I have had some recovery and am working on
standing and then hope to progress to walking (probably with braces and
crutches) Tell your daughter to keep a good sense of humour, it can
make all the differance. Joellen