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> From: Timothy M. Faber <TMFaber(AT)ij.net>
> To: tmic-list(AT)eskimo.com
> Subject: Re: doctors....
> Date: Friday, October 10, 1997 2:50 AM
>
> As an RN and a son (14 months) with TM, I say dump your PMD (primary
> medical doctor). He may be listening, but he isn't hearing you. Chances
> are, he's out of his league. TM is rare enough, he may not be all that
> comfortable with your diagnosis. Stick with your neurologist - this is
> their area.
>
> PS: I had a lousy day if I sound rough on the PMD.
>
>
>
> At 10:53 PM 10/8/97 -0400, you wrote:
> >Hi all:
> >
> >I had my initial TM attack on Labor Day Weekend. I have only written to
the
> >list a few times.
> >
> >I saw my primary care physician yesterday for the first time since
seeing the
> >neurologist and he basically brushed me off and discounted my symptoms.
He
> >has always been a great doctor before and I am so upset with him now. I
> >can't understand why he would act like this toward me. When I told him
about
> >my difficulty walking, he said I needed to walk more for exercise. When
I
> >told him about the trembling in my arm, he ignored it. He also wanted
to
> >prescribe fenfluermine (spelling?), the part of Phen-Fen that is still
on the
> >market. I guess he feels all of my complaints will go away if I lose
weight.
> > I told him that I wasn't interested. He said he was surprised at the
> >diagnosis of TM. I told him the neurologist talked to me about the
> >possibility of having MS. He was quickly heading out the door, turned
and
> >frowned at me, then said "I know, I read his notes. It doesn't fit the
> >pattern." And with that he was gone. I can't believe he dismissed me
like
> >that!
> >
> >The neurologist called me yesterday and I told him about my current
concerns.
> > He decided to schedule me for an MRI. He said we may have to go ahead
and
> >do a lumbar puncture after that. I really do want to find out exactly
what
> >is causing my problems. But, on the other hand I am afraid to go on.
Does
> >that even make sense?
> >
> >This is such a scary thing. How do you all cope?
> >
> >Sharon M.
> >
> >
> Timothy M. Faber
> Faber Desktop Solutions
> TMFaber(AT)IJ.net