HOW GREAT TO HAVE SO MANY NEW MESSAGES! MY TM WAS FIRST THOUGHT TO BE A
STROKE, THAN G-B SYNDROME, FINALLY ATM. HAD 3 MRI, 3 SPINAL TAPS (THEY SENT
THE LAST TAP AROUND THE COUNTRY FOR OTHER OPINIONS.). MRIS SHOWED NO
LESIONS, BUT WHAT CONVINCED MY DR. THAT IT WASN'T MS WAS THE UPPER BODY
STRENGTH I MAINTAINED. ONSET TOOK ABOUT 2 WEEKS. BEGAN WITH LOSS OF BALANCE
, NUMBNESS ASCENDED TO MIDDLE OF CHEST OVER ABOUT 6-8 MONTHS. WENT TO FULL
WHEEL CHAIR IN ABOUT A YEAR. LOSS OF FEELING SEEMS TO GET DEEPER OVER TIME,
BALANCE IS GETTING VERY BAD NOW, EVEN IN CHAIR. LOSS OF FEELING IS BAD IN
HANDS, UP TO WRIST. OCCUPATIONAL THERAPIST IS COMING TO HELP ME WITH GRIP
ON KNIFE, FORK,ETC. SO FAR VERY LITTLE PAIN EXCEPT BURNING AND TINGLING IN
LEGS AND HANDS. ONCE I REALIZED ATM WASN'T GOING TO KILL ME, I RELAXED ALOT
. SO FAR, NONE OF YOU HAVE MENTIONED THE TIGHT GIRDLE AROUND WAIST AND
CHEST. AM I THE ONLY ONE EXPERIENCING THAT? THERE IS SOME PAIN, BUT MORE
LIKE ARTHRITIS. MY DIABETES (TYPE 2) WAS, BY ONE DR., SEEN AS POSSIBLY
RELATED. HE HAS SINCE DROPPED THAT AFTER DOZENS OF BLOOD TESTS. SO, LIKE
MANY OF YOU, THEY THINK IT'S ATM. RECENTLY, ONE DR THOUGHT I HAD
PARANEOPLASTIC SYNDROME (CANCER IN THE SPINE). WENT TO CANCER SPECIALIST;
SHE FOUND NOTHING, BUT DID SAY
THAT WHEN NEUROLOGISTS GET STUMPED, THEY TEND TO CALL IT CANCER, AND THEY
ARE ALMOST ALWAYS WRONG. FINALLY, I HAVE DISCOVERED THAT THERE ARE MANY CARE
GIVERS OUT THERE. I HAVE 5 HOURS OF CARE A DAY, 7 DAYS A WEEK. GREAT, GREAT
HELP TO MY WIFE. DO YOU HAVE DEPT. OF AGING IN YOUR COUNTY OR STATE? THEY
PROVIDE FREE SERVICE. YOUR INSURANCE POLICY SHOULD HAVE SOMETHING. THATS
IT FOR NOW. DO HAVE A GREAT WEEKEND AND HANG IN THERE..............DON IN
PINEHURST, N.C.