Re: Information

Weger(AT)aol.com
Wed, 2 Oct 1996 19:55:17 -0400

MS & TM,

I was responding to someones question of what the percentage of MS leading to
TM. As many of you know when you have an illness you look for information. In
my search to try to locate info on MS and TM I found the mentioned article
from 1991 from the Univ of Maryland. I, like many of you, do not put alot of
value in neurological research because it seems to be a guessing game but I
think it is important to read it.

Joan - you questioned the numbers that I reported and questioned their
validity. I did not send this info to this list because of what I believe but
what the research from a leading University is using. Maybe I did not make it
clear but when they reported these numbers they were referring to past
research not their research. There research team was looking at 3 patients
who had TM and were now experiencing MS like symptoms.

I am one of the leading critics of not enough research occuring in the TM
field. When we do find one like that of the Univ of Maryland we need to them
some credit for at least looking into some of the difficulties that occur
with TM.

What I believed that the journal article brought out was the fact that the
group of subjects that they looked at who had TM and then showing signs of MS
were showing signs of what they believe could possibly be a new subgroup of
TM->MS which they referred to as a "relapsing demylinating disease". I wonder
if this is what I am suffering from.

Joan you also stated that you hope I didn't get the impression that you were
picking on me by reporting on what research I found. I do not take it as such
and we need to keep questioning statistics, doctors, and research findings.

Joan you also made the statement about what will happen will happen. I agree
with you to a point. I gave up questioning why me many years ago. I am now
looking into wanting to give my body to research when I die. My hope is that
maybe that will help others down the line and they wont have to suffer as
many of us have.

Thanks for listening and bringing forth good questions!

Al
Sarasota, FL