Transverse Myelitis Association Survey #1

Most of the survey questions are open-ended. We have provided only minimal space on the questionnaire for your responses due to our space limitations. For most of these questions, you are going to need additional paper to provide us with your answers. We urge you to use additional paper and to provide as thorough answers to each of the questions as possible. When you use additional paper, please number each of the responses so that they can be properly matched with the approprfiate question.

Please answer the questions to the best of your ability. If you have difficulty remembering dates, the specific sequence of events and their durations, medications or any other specific information requested in the survey, please discuss these issues with your families and with your doctors. Attempt to reconstruct events as best as you can. It is important that we collect accurate information. If you are providing us with approximations or with your best recollections, that is fine. Just indicate the level of accuracy of the information in association with the information you provide us. For example, if you are not certain of the exact amount of time you experienced flu symptoms before you contracted transverse myelitis, please indicate that your answer is an approximation.

If you have difficulty writing or typing, please ask someone to assist you in completing the survey. So long as the responses are properly numbered, you may use whatever paper you would like to complete the survey. Also, if it is easier for you to complete and send the information electronically, please feel free to type your responses and e-mail them to us electronically. You may send them to . We would like to begin the analysis of the survey results as quickly as possible. We are planning on both a content and statistical analysis of the data and information. Data coding, data entry, and data and information analysis are time intensive tasks. The surveys should be mailed to:

Transverse Myelitis Association
c/o Sanford J. Siegel
1787 Sutter Parkway
Powell, Ohio 43065

In the process of reviewing and filling out the answers to the survey, you may think of additional issues or information that we have not covered in this first questionnaire. When you return your responses, please provide us with any questions or issues you would like to see included in future surveys. You may also wish to discuss this survey with your doctors. If they have additional issues or information that they would find useful, please include those areas, as well. If your doctor is interested in reviewing the results of the research, please communicate his/her interest to us. Please provide us with their name and address and we will include them in our dissemination of the results.

We greatly appreciate your willingness to provide us with this very personal information. We believe that this information will ultimately help doctors better understand transverse myelitis and the people who have contracted this illness. We believe that this information will ultimately help our members.

We will publish the results of the survey analysis in future newsletters. If you have any questions or concerns about the survey, please feel free to contact Sandy Siegel.

Sanford J. Siegel
Newsletter Editor
1787 Sutter Parkway
Powell, OH 43065

Thanks for helping with the postage...

As you can well imagine, the Transverse Myelitis Association mailings have become a significant expense. We are asking that you assist us by providing the postage to return the surveys. In most cases, the survey responses will weigh more than one ounce; the postage will be more than a 33 cent first class stamp. Please be sure that the proper postage is on the return, so that your survey is delivered. We greatly appreciate your willingness to assume this cost.

• Survey in plan text for printing

Copyright © 2007 The Transverse Myelitis Association. All rights reserved.
Document: http://www.myelitis.org/survey.htm
Last Modified: Tuesday, 17-Apr-2007 16:15:55 PDT