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2010 Rare Neuroimmunologic Disorders Symposium

September 24 - 26, 2010
Dallas, Texas

sponsored by

The Transverse Myelitis Association,
UT Southwestern Department of Neurology
and the Office of Continuing Medical Education

 

1 Welcome and Introduction
- Benjamin Greenberg, MD, MHS, UT Southwestern
- Sandy Siegel, PhD, Transverse Myelitis Association
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2 Overview of Neuroimmunologic Disorders
- Angela Bates, MD, UT Southwestern
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3

Immunology Primer for the Non-Immunologist
- James Bowen, MD, Swedish Medical Center
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4 Transverse Myelitis: a primer for patients and non-neurologists
- Carlos Pardo, MD, Johns Hopkins
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www Johns Hopkins Transverse Myelitis Center
5 Distinguishing Pediatric TM from ADEM and CIDP: Clinical and Genetic Aspects
- Gregory Barnes, MD, PhD, Vanderbuilt University
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6 Neuromyelitis Optica
- Michael Levy, MD, PhD, Johns Hopkins
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www Johns Hopkins Transverse Myelitis Center
7 Pediatric Multiple Sclerosis
- Donna Graves, MD, UT Southwestern
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8 Treating Acute Inflammation
- Dean Wingerchuk, MD, Mayo Clinic
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9 Immunosuppressants and Immunomodulation for Prevention
- Erik Von Burton, MD, UT Southwestern
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10 Integration of Alternative Therapy
- Joanne Lynn, MD, Ohio State University
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11 The Genetics of Autoimmunity
- Brian Weinshenker, MD, Mayo Clinic
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12 Beyond Genetics, The Epidemilogy of Autoimmunity
- Benjamin Greenberg MD, UT Southwestern
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13

Creating a Home for NMO: The Guthy Jackson Charitable Foundation
- Katja Van Herle, MD, MSPH
- Jacinta Behne, MA, Greater Good Foundation
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www The Guthy-Jackson Charitable Foundation
14 The ACP Repository: A Research Resource for Demyelinating Diseases
- Hollie Schmidt, Accelerated Cure Project
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www Accelerated Cure Project web site
15 The Role of a Grass Roots Organization in Rare Diseases: The TMA Story
- Sandy Siegel, PhD, Transverse Myelitis Association
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16 Neuropathic Pain
- Thomas Abraham, RN, UT Southwestern
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17

Depression
- Adam Kaplan, MD, PhD, John Hopkins
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18 Bladder Dysfunction
- Gary Lemack, MD, UT Southwestern
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19 Sexual Dysfunction
- Wanda Castro-Borrero, MD, UT Southwestern
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20 Heat Intolerance in Multiple Sclerosis
- Elliot Frohman, MD, PhD, UT Southwestern
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21 Spasticity Management
- Janet Dean, RN, Kennedy Krieger Institute
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www International Center for Spinal Cord Injury (ICSCI)
22 Cognitive Changes in Demyelinating Disease
- Lana Harder, PhD, UT Southwestern
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23 How to Manage Your Care Team
- Maureen Mealy, RN, Johns Hopkins
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www Johns Hopkins Transverse Myelitis Center
24

Exercise and Therapy & Activity-Based Therapy
- Daniel Becker, MD, Kennedy Krieger Institute
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www International Center for Spinal Cord Injury (ICSCI)

25 Power Assist Wheels
- Charles Levy, MD, University of Florida
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26

How rare Neuroimmunologic diseases teach us about more common relatives
- Lawrence Steinman, MD, PhD, Stanford University
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27 2010 TMA Distinguished Service Award
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28

The Stem Cell Horizon: Where Are We?
- Michael Levy, MD, PhD, Johns Hopkins
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29

Moderated Panel Discussion Part 1 topics

  • Differences in inflammatory response
  • Migration of embryonic stem cells
  • NMO--confusion with MS
  • NMO attack-acute emergency procedures-plasma exchange or not
  • Therapy escalation
  • TM emergency room procedures
  • Getting TM emergency procedures out to Dr.s everywhere
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30

Moderated Panel Discussion Part 2 topics

  • Drugs vs. Rehab
  • Rehab vs. Therapy-differences
  • Misdiagnosis situations
  • MD lack of training in Neurological disease
  • Neurologist's lack of experience with TM, NMO etc.
  • Methods to judge success of treatment
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31

Moderated Panel Discussion Part 3 topics

  • Rehabilitation
  • Exercise vs. therapy
  • NMO treatment
  • Very young patient diagnosis-problems
  • TM changing to MS
  • Motivating young patients to do therapy
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32

Moderated Panel Discussion part 4 topics

  • TM and Vaccinations
  • New MS medicine available in October
  • Problems diagnosing children in ER
  • How to Prepare to see a new Doctor
  • Developmental problems of children with neurological disease
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Document: http://www.myelitis.org/rnds2010/index.htm
Last Modified: Monday, 16-May-2011 19:52:48 MST