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 Information and Support for Transverse Myelitis and related neuroimmunologic conditions of demyelinating attacks of the central nervous system
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The time now is Sat Aug 30, 2008 1:26 am |
View unanswered posts |
| Forum | Topics | Posts | Last Post | |
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| Main Topics | ||||
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General Discussion Talk about whatever doesn't fit in other topics. Moderators jlubin, marieke |
983 | 6320 | Fri Aug 29, 2008 1:39 pm hwyflier2  |
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Medication, Treatments & Therapies Discuss medications you are taking; treatment options (such as plasmapharesis) and therapies (such as aqua therapy, acupuncture, etc) Moderators jlubin, marieke |
154 | 1040 | Fri Aug 29, 2008 11:17 pm azdudley |
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Pain Experiences & treatments Moderators jlubin, marieke |
138 | 1029 | Fri Aug 29, 2008 2:56 pm JeffFan24rox |
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Bowel & Bladder Issues Moderators jlubin, marieke |
101 | 734 | Sat Aug 16, 2008 6:44 pm Karin |
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Muscle Spasms, weakness or paralysis discuss symptoms related to arms, legs, torso and neck; solutions and what works for you Moderators jlubin, marieke |
145 | 1180 | Wed Aug 27, 2008 12:42 am Sarah Nguyen |
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Teens with TM A place for teens and young adults Moderators jlubin, marieke |
52 | 320 | Fri Jul 18, 2008 8:24 am sam.w |
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Children with TM Parents of children with TM Moderators jlubin, marieke |
43 | 209 | Wed Jul 02, 2008 11:38 am Lynne |
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Depression Depression caused by TM Moderators jlubin, marieke |
31 | 251 | Thu Jul 03, 2008 7:58 pm jlubin |
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Insurance, Social Security & other Assistance Applying for Social Security, Medicare, Medicaid. Assistance programs and service. Moderators jlubin, cossyh, marieke |
25 | 96 | Sat Aug 23, 2008 5:35 am janie |
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Women's Heath Issuses & Pregnancy Moderators jlubin, marieke |
31 | 189 | Tue Jul 22, 2008 9:31 am sam.w |
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Research Discussion about the latest research in TM Moderators jlubin, marieke |
38 | 147 | Thu Aug 28, 2008 7:28 pm hwyflier2 |
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Relationships & Sexuality Moderators jlubin, marieke |
32 | 173 | Mon Jul 28, 2008 8:37 pm mntnrain80c |
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Neurologist knowledgable about TM, ADEM, NMO Need help finding one? Have one you want to recommend? Moderators jlubin, marieke |
48 | 146 | Sun Aug 24, 2008 12:46 am summerofleo |
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Respiratory breathing related problems. Moderators jlubin, marieke, scrubsz |
3 | 8 | Thu May 08, 2008 1:02 am oahu60 |
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Back to Work with TM Questions, tips, ideas Moderators jlubin, marieke |
17 | 106 | Fri Jul 25, 2008 7:27 pm farrahhh |
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Parents, Spouses & Caregivers Moderators jlubin, marieke |
6 | 25 | Sat Mar 15, 2008 1:27 pm Lynne |
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Acute Disseminated Encephalomyelitis (ADEM) involves demyelination in the spinal cord and in the brain. The demyelination in the brain is different than a demyelinating attack from MS; the lesions are scattered and do not appear in the same pattern as those from an MS attack. Moderators jlubin, marieke |
238 | 1244 | Sat Aug 23, 2008 3:36 am hurdsarah |
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Transverse Myelitis (TM) demyelination in the spinal cord only; there is no brain or optic nerve involvement. It is a monophasic condition; the demyelinating attack only occurs once. Moderators jlubin, marieke |
133 | 666 | Wed Jul 16, 2008 7:09 pm carriea74 |
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Devic's Disease/Neuromyelitis Optica (NMO) an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin that almost exclusively affect the optic nerves and spinal cord. A rare disorder which resembles multiple sclerosis (MS) in several ways, but requires a different course of treatment for optimal results. Moderators jlubin, marieke |
109 | 486 | Wed Jul 16, 2008 7:06 pm Grace53a |
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Recurrent TM Recurrent TM involves different and distinct episodes of inflammatory attack in the spinal cord. There is no brain or optic nerve involvement in any of the demyelinating episodes. Moderators jlubin, marieke |
25 | 144 | Thu Feb 21, 2008 5:24 pm Amylou |
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Recurrent Optic Neuritis involves multiple episodes of demyelinating attacks of the optic nerve. There is no brain or spinal cord involvement. Moderators jlubin, marieke |
3 | 8 | Sun Apr 03, 2005 5:17 pm Randi |
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Optic Neuritis Optic Neuritis (ON) is an inflammation, with accompanying demyelination, of the Optic Nerve serving the retina of the eye Moderators jlubin, marieke, kmarie1016 |
4 | 22 | Tue May 06, 2008 4:52 pm keno |
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Myelitis in the News discuss news articles about people living with myelitis Moderators jlubin, marieke |
15 | 54 | Thu Aug 14, 2008 3:51 pm elisabeth |
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Chat Group Forum Notice of upcoming topics; Continue discussions from live chat meetings Moderators jlubin, Unknown, Donna Peaslee (cbumpkin), marieke |
113 | 198 | Tue Nov 13, 2007 12:53 pm stagof |
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Equipment Swap Post assistive equipment you no longer need Moderator jlubin |
5 | 10 | Thu Oct 20, 2005 11:11 pm verify |
| Symposia and Workshop Information | ||||
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2008 Rare Neuroimmunologic Disorders Symposium July 16-19, 2008 - Redmond, WA |
6 | 24 | Mon Aug 18, 2008 11:38 am Sky |
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2008 Retreat Weekend for teens and young adults October 24 – 26, 2008 at Victory Junction Gang Camp |
2 | 8 | Tue Jul 29, 2008 10:19 pm jlubin |
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2008 California TM-ADEM-NMO-ON Symposium the TMA is going to have a one-day symposium in Anaheim on Saturday, February 23rd. |
2 | 8 | Mon Apr 21, 2008 6:10 pm jlubin |
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2007 TMA Kids Camp Summer Camp for Kids with TM, ADEM, NMO or ON and their Families: August 19 – 24, 2007 Moderator jlubin |
8 | 24 | Sat May 26, 2007 4:14 pm jlubin |
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2006 Young Adult’s Autumn Retreat November 17-19, 2006 Moderator jlubin |
4 | 8 | Sat Dec 02, 2006 7:03 pm jlubin |
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2006 Rare Neuroimmunologic Disorders Symposium Wednesday, July 19 - Sunday, July 23. Moderator jlubin |
5 | 28 | Sat Nov 11, 2006 4:56 am Terri J. |
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2004 Rare Neuroimmunologic Disorders Symposium Wednesday, August 18 - Sunday August 22 Moderator jlubin |
6 | 14 | Tue Jan 18, 2005 9:30 pm margaret shearer |
| Fund Raising Events | ||||
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Fund Raising Discussion Talk about fund raisings Events Moderators jlubin, marieke |
29 | 103 | Tue Jul 01, 2008 2:15 am jlubin |
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Reading for Rachel A program to encourage children to read while helping raise funds to find a cure for Transverse Myelitis Moderator jlubin |
1 | 1 | Thu Jan 01, 2004 6:12 am lindaellan |
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Ride the Rockies for Transverse Myelitis 404 Miles · June 15 - 21, 2003, riding in this event to raise research dollars for TM and to raise awareness for the adaptable sport of handcycling to promote health and fitness for people with disabilities. Moderators jlubin, smiller |
8 | 14 | Mon Jun 20, 2005 10:26 pm Scooter-girl |
| Local/Regional Support Groups | ||||
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Support Group Leaders Moderator jlubin |
10 | 23 | Thu Apr 26, 2007 3:17 pm Brad Highwood |
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Africa Moderators jlubin, marieke |
0 | 0 | No Posts |
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South African TM Support Group Moderator moss25 |
0 | 0 | No Posts |
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Asia Moderators jlubin, marieke |
1 | 1 | Sun Dec 21, 2003 12:23 pm mcfly |
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Australia & South Pacific Moderator jlubin |
5 | 22 | Sun Jan 14, 2007 5:17 am gillymac |
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New Zealand TM Support Group Moderators jlubin, Jen, Dyllice |
22 | 70 | Fri Aug 15, 2008 11:53 pm Shirley |
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Sri Lanka TM Support Group |
1 | 1 | Sun Nov 11, 2007 9:05 pm jlubin |
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Central & South America Moderators jlubin, marieke |
5 | 5 | Mon Aug 06, 2007 3:07 pm mariano1966 |
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Europe Moderators jlubin, marieke |
3 | 15 | Sat Feb 25, 2006 12:28 pm Diana |
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United Kingdom TM Support Groups UK groups including London and Scotland support groups Moderators jlubin, marieke, lewgray, Support Group Leaders |
95 | 390 | Wed Aug 27, 2008 11:11 am lumpy |
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Selbsthilfegruppe Deutschland Moderator Ursula Mauro |
87 | 388 | Wed Jul 30, 2008 8:41 pm Ursula Mauro |
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Romania Grupul de Sprijin din Romania |
0 | 0 | No Posts |
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Scandinavia TM Support Group Denmark, Norway, Sweden, Iceland Moderator jlubin |
2 | 3 | Tue Dec 04, 2007 6:00 pm TONO |
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Middle East Moderator jlubin |
1 | 1 | Mon Nov 03, 2003 3:22 am jlubin |
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ADEM support group |
4 | 8 | Fri Aug 01, 2008 12:28 pm lewgray |
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Optic Neuritis Support Group Moderators jlubin, marieke, kmarie1016 |
1 | 11 | Wed May 23, 2007 7:01 pm kmarie1016 |
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North America Moderators jlubin, marieke |
8 | 22 | Wed Apr 23, 2008 1:31 pm Uyen |
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Canada TM Support Group Moderator marieke |
13 | 71 | Mon Jun 30, 2008 3:00 am Dar |
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Arkansas TM Support Group |
0 | 0 | No Posts |
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California TM Support Group Moderators jlubin, dcapen, cmcleroy |
7 | 27 | Sun Jul 15, 2007 11:25 am hannerz |
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Colorado TM Support Group Moderator jlubin |
0 | 0 | No Posts |
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Connecticut TM Support Group Moderator jlubin |
5 | 15 | Tue Feb 22, 2005 3:29 pm Jean G |
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Florida TM Support Group Moderators jlubin, Brad Highwood |
3 | 3 | Thu Apr 26, 2007 2:50 pm Brad Highwood |
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Illinois Support Group Moderator jlubin |
4 | 7 | Sat Nov 25, 2006 4:49 pm marieke |
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Kentucky TM Support Group Moderator jlubin |
12 | 38 | Thu May 01, 2008 12:48 am kathy19574 |
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Louisiana TM Support Group |
0 | 0 | No Posts |
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Maine TM Support Group |
0 | 0 | No Posts |
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Massachusetts TM Support Group Moderator jlubin |
2 | 13 | Fri Dec 02, 2005 12:37 am CindyM |
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MD/DC TM Support Group Maryland/Washington DC area Moderator jlubin |
9 | 15 | Fri Sep 14, 2007 7:44 pm jlubin |
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Michigan TM Support Group Moderators jlubin, Margo, Lynne |
22 | 86 | Tue Aug 19, 2008 12:35 pm Lynne |
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Minnesota TM Support Group |
0 | 0 | No Posts |
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Mississippi TM Support Group Moderators jlubin, Candlelight |
4 | 10 | Thu Jan 22, 2004 5:32 am Eagleeyesupersnozzle |
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Missouri TM Support Group |
1 | 2 | Thu Nov 15, 2007 2:02 am toot |
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New England Tri-State Area Support Group Vermont, Maine, & New Hampshire Moderator jlubin |
6 | 9 | Mon Mar 05, 2007 8:24 pm jdavids13 |
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Central New Jersey TM Support Group |
0 | 0 | No Posts |
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New York TM Support Group Moderator jlubin |
9 | 28 | Fri May 23, 2008 6:23 pm jlubin |
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North Carolina TM Support Group Moderator jlubin |
2 | 3 | Sun Dec 04, 2005 10:34 pm Brk4you |
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Northwest TM Support Group Washington, Oregon, Alaska, Idaho and Britsh Columbia Moderator jlubin |
4 | 16 | Fri Sep 07, 2007 7:29 pm jlubin |
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Ohio TM Support Group Moderators jlubin, smiller |
7 | 27 | Fri Jun 20, 2008 10:01 am marymc |
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Oklahoma TM Support Group |
0 | 0 | No Posts |
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TM Support Group of Pennsylvania Moderator jlubin |
5 | 11 | Sat Aug 16, 2008 4:38 pm hwyflier2 |
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Texas Tranverse Myelitis Coalition Moderators jlubin, cossyh |
4 | 5 | Tue Feb 07, 2006 10:59 pm courtneysmom |
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Virginia TM Support Group Moderators jlubin, Pamela |
9 | 11 | Sat Oct 13, 2007 9:56 pm jlubin |
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Central Savannah River Area TM Support Group The CSRA is a metropolitan area encompassing five counties within the states of South Carolina and Georgia. All five counties in the area border the Savannah River. Moderator mamamckie |
1 | 1 | Thu May 29, 2008 5:37 am mamamckie |
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Disclaimer: The Transverse Myelitis Association does not endorse any of the medications, treatments or products reported. This information is intended only to keep you informed. We strongly advise that you check any drugs or treatments mentioned with your physician.