2008 Rare Neuroimmunologic Disorders Symposium
Paula Lazzeri

The TMA and Johns Hopkins Project RESTORE teamed up in July 2008 to present the 2008 Rare Neuroimmunologic Disorders Symposium in Redmond, Washington.  More than 25 medical presenters attended from various Medical Centers and Universities from across the country.  Most of the TMA Medical Advisory Board was there.  The presentations covered everything from a description of each of the rare neuroimmunologic disorders, the acute therapies, the most effective symptom management strategies and the most promising rehabilitative and restorative research.  Chitra Krishnan has designed our program over the years and it has to be the most comprehensive and intensive education program for people who have these disorders and their families. 

We had almost 200 in attendance from across the United States and from around the world.  Three of our international support group leaders attended: Ivan Fernando from Sri Lanka, Lew Grey from the UK, and Nana Yaa Agyeman from Ghana.  Our state support group leaders were also well represented at the symposium.  Having the symposium in Seattle also allowed Jim Lubin, TMA Officer and Board Member, to attend.  It was really special for all of us to have Jim participate in the entire symposium.

It was great seeing old friends and meeting new members I can now call friends.  For those of you unable to attend the symposium, all of the presentations have been posted on the TMA website. 

2008 Rare Neuroimmunologic Disorders Symposium