Transverse Myelitis Association
Volume 5 Issue 1
December 2002
Page 5
The Transverse Myelitis Association to Fund the Johns
Hopkins
Transverse Myelopathy Center for 2002-2003
The Transverse Myelitis Association is pleased to announce the award of a
$50,000 grant to the Johns Hopkins Transverse Myelopathy Center for the 2002-2003
fiscal year. The grant will fund the Research Program Coordinator position
at the JHTMC. The Johns Hopkins Transverse Myelopathy Center was established
in October 1999 as a multidisciplinary center dedicated to the diagnosis
and treatment of Acute Transverse Myelitis (ATM) and to better understanding
of the pathophysiology and natural course of the disease. The Center
of Excellence has several explicit goals:
- To provide expert care and treatment for patients in the
acute phase of ATM;
- To extend the spectrum of care through collaborative management
of the disease condition by health care providers from multiple disciplines:
neurology, urology, physical medicine and rehabilitation, rheumatology, physical
and occupational therapy, neuroradiology, and neurosurgery;
- To develop standard diagnostic criteria and work-up for
patients based on clinical research to understand the natural course of the
disease;
- To perform clinical and basic science research in order
to comprehend the pathophysiology of ATM;
- To devise novel therapeutic interventions for patients
in the acute and convalescent stages of ATM;
- To coordinate international symposia as platforms for both
physicians and patients to interact and share theories and advances in research
and management of ATM; and
- To publish and disseminate the knowledge gained through
clinical practice, research and international symposia to community physicians
to target recognition of the disease in the community.
The JHTMC is the only medical center in the world focused on the treatment
of ATM and research on ATM. Since its inception, Dr. Kerr, the Director
of the JHTMC, has cared for hundreds of adult and pediatric ATM patients.
In addition to his own practice at Johns Hopkins, Dr. Kerr also consults
with physicians from all over the world to offer care for ATM patients.
The experience and expertise he is acquiring about ATM is invaluable to our
community. As the goals of the JHTMC identify, Dr. Kerr is also committed
to disseminating the information he develops at the TM Center through publications,
through symposia with other physicians and in educational meetings with ATM
patients and their caregivers.
In addition to caring for ATM patients, the JHTMC is committed to basic and
clinical research on Acute Transverse Myelitis. Dr. Kerr is involved
in numerous ATM research projects. He is also coordinating a large
number of projects involving other physicians at Johns Hopkins and employing
a multidisciplinary approach. Dr. Kerr is also engaged in a large-scale
project to encourage ATM research in a consortium of physicians and scientists
who will share data and information about the condition.
The existence of the JHTMC has changed the future for the TM community.
What were hopes for our community just a short time ago are now becoming
realities. There is a focused and organized effort to develop the best
possible treatments for ATM symptoms. There is a focused effort to
perform research to better understand ATM. There is a community of
physicians and scientists who are energized to find the answers to the many
questions that surround ATM. These physicians and scientists work for
institutions around the country and around the world. The TM Center
at Johns Hopkins provides the initiative and the coordination for much of
this activity.
Meeting the TMA goals of education, awareness, and advocacy for ATM research
have all been intensified and accelerated by the establishment and growth
of the JHTMC. It is absolutely imperative that the Johns Hopkins Transverse
Myelopathy Center continue to thrive and expand. The TMA is committed
to that purpose. The TMA will continue to work closely with Dr. Douglas
Kerr and Chitra Krishnan to find funding sources for the JHTMC. The
TMA remains committed to raising funds for the important research projects
of physicians and scientists from across the country and around the world
that are central to the needs and the hopes of the TM community. |
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