Friday, July 19, 2002

Updates on TM treatment and cure research and results

Pain: developmental assessments of pain from preverbal infancy to young adulthood; and medical strategies for the management of pain

Pain management: behavioral strategies

Management of bowel and bladder symptoms

Management of spasticity symptoms

Physical, social and emotional issues and strategies surrounding sexual dysfunction

Selecting the most appropriate and most effective adaptive equipment in pediatrics for mobility

Use of Electrical Muscle Stimulation: TES (Threshold Electrical Stim) and NMES (Neuromuscular Electrical Stim)

Pediatric physical therapy: effective techniques and expectations

Pediatric occupational therapy: effective techniques and expectations

Strategies and informed decision-making regarding childhood vaccinations

Pediatric nutrition and diet: developmental issues and the immune system

Pediatric pharmacological issues: the use of medications in childhood and the long-term use of medications

Saturday, July 20, 2002

Alternative therapies in pediatrics: aquatic, equestrian, yoga, martial arts

Self-esteem and disability: helping our children with TM build a healthy self

Managing stress and a marriage when you have a child with TM

Managing a family when you have a child with TM: sibling issues

Appropriate and effective clothing and shoe choices for children with TM: finding what works and what they will wear

Recreation choices for the disability community: national organizations, camps and adaptive recreational equipment

Active and passive entertainment choices (gaming, computers, art and music) for the disability community, including the role of technology

Children with TM and the educational system: working with the school system, working with teachers and support staff, advocacy and legal rights, setting expectations

Community, state and national resources for the disability community: Medicaid, Medicare, state entitlements, funding support for equipment and supply needs

Sunday, July 21, 2002

Adaptive equipment swap: developing an inventory and strategies for setting up the virtual equipment closet

Roundtable discussion and Q&A (for parents) with the doctors

Roundtable discussion for older teens and young adults with a facilitator

Children's and Family Activities

Thursday Evening, July 18, 2002: Family dinner; movies for children
Occupational and physical therapists and OT and PT students will serve as companions for the children with TM over the weekend and particularly on the fieldtrips. The OTs and PTs will have dinner with the families, providing an opportunity for everyone to meet and exchange information.

Friday, July 19, 2002: Children's Tour of the Center for Science and Industry (luncheon for the children at the museum)

Friday Evening, July 19, 2002: Italian dinner; family games and movies for children

Saturday, July 20, 2002: Children's Guided tour of the Columbus Zoo
(luncheon for the children at the zoo)

Saturday Evening, July 20, 2002: Pool Party/ Picnic Bar-B-Que/ Karaoke
movies for children

Kung Fu and Tai Chi Demonstration
Storytelling
Music
Arts and Crafts
Games
Sporting events, festival on the riverfront, county fair, concerts, if scheduled - for older children, young adults