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Transverse Myelitis Association
Journal Volume 1 - January 2006

Article 44

Pediatric Cases of TM and ADEM

I have for a very long time attempted to compile a list of our members who have pediatric TM , ADEM and NMO.  I have been unable to do so, because of the much larger numbers of pediatric cases, the amount of work involved in creating this list and then updating the list, and the number of other hobbies that take up so much of my time and attention.  In the absence of having this list, we have established numerous informal networks of parents from around the world who communicate regularly.  Stephen is in the process of creating another iteration of the list of our children with TM, ADEM and NMO as we compile the list of interested families for the 2007 Kid’s Camp.  This might be another wonderful opportunity to create this important list for the purpose of sharing information and support.  In order to create the most effective opportunity for sharing information and support, the list would need to include the age when your children got TM or ADEM and their current age.  If you have an interest in volunteering to work with the TMA in creating this pediatric list, please let me know.

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