In Their Own Words

In each issue of the Journal, we will bring you a column that presents the experiences of our members.  Their stories are presented In Their Own Words by way of letters they have sent us.  We are most appreciative of their willingness to share their very personal stories.  It is our hope that through the sharing of these experiences, we will all learn something about each other and about ourselves.  It is our hope that the stories will help us all realize that we are not alone.  It is important to bear in mind that all newsletters and journals are archived on our web site.  Should someone do an internet search of your name, your article is likely to be identified in their search results.  You may submit your stories by sending them either by e-mail or through the postal service to Sandy Siegel.  Please be sure to clearly state that The Transverse Myelitis Association has your permission to publish your article.

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I could beg but oh what for?
My performance convincing ... im not in pain anymore
Im alright just give me a breath
This feeling i have puts all to the test.

I woke up this morning what more can you ask?
I woke up last night and there it was burning quite bright.
I've practiced a face one that can hide this overwhelming feeling inside.

I cannot remember a painless day.
Either i have forgotten or wished them away.
It is a small hell to be trapped within.
This fire stilling roaring stoked time and again.

My soul grows weaker and my mind unclear
I give it my all and in this you must applaud
My performance convincing I'm not in pain anymore.

S. M. Holmes

Copyright May 1, 2009