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General Discussion
Talk about whatever doesn't fit in other topics.
Moderators: jlubin, marieke
- 204 Topics
- 1673 Posts
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Last post by Lynne
on Thu Mar 18, 2010 4:52 am
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Transverse Myelitis (TM)
Newly diagnosed? Just found others after years of being diagnosed with this rare disorder? Share your story here.
Moderators: jlubin, marieke
- 176 Topics
- 2278 Posts
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Last post by marieblond
on Wed Mar 17, 2010 3:48 pm
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Parents, Spouses & Caregivers
Moderators: jlubin, marieke
- 4 Topics
- 14 Posts
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Last post by marieke
on Sun Mar 07, 2010 8:34 am
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Medication, Treatments & Therapies
Discuss medications you are taking; treatment options (such as plasmapharesis) and therapies (such as aqua therapy, acupuncture, etc)
Moderators: jlubin, marieke
- 61 Topics
- 463 Posts
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Last post by Sew
on Thu Mar 04, 2010 10:46 am
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Pain
Experiences & treatments
Moderators: jlubin, marieke
- 29 Topics
- 226 Posts
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Last post by Bonniesl
on Fri Mar 05, 2010 1:31 pm
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Fatigue
Dealing with fatigue related to TM. Questions, concerns, ideas on how to handle it.
Moderators: jlubin, marieke
- 2 Topics
- 6 Posts
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Last post by marieke
on Mon Jan 11, 2010 11:41 am
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Bowel & Bladder Issues
Moderators: jlubin, marieke
- 23 Topics
- 170 Posts
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Last post by meanjet
on Fri Jan 01, 2010 9:41 am
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Muscle Spasms, weakness or paralysis
discuss symptoms related to arms, legs, torso and neck; solutions and what works for you
Moderators: jlubin, marieke
- 16 Topics
- 171 Posts
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Last post by marieke
on Sat Jan 09, 2010 9:05 am
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Living and Working with TM
Post questions. Make recommendations. Share inspirational achievements.
Moderators: jlubin, marieke
- 8 Topics
- 153 Posts
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Last post by WildKat
on Sun Feb 07, 2010 9:12 am
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Teens with TM
A place for teens and young adults
Moderators: jlubin, marieke
- 12 Topics
- 81 Posts
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Last post by jlubin
on Thu Mar 04, 2010 9:52 pm
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Children with TM
Parents of children with TM
Moderators: jlubin, marieke
- 6 Topics
- 17 Posts
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Last post by JaydonsMom
on Fri Mar 12, 2010 1:03 pm
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Depression
Depression caused by TM
Moderators: jlubin, marieke
- 7 Topics
- 82 Posts
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Last post by marieke
on Tue Dec 29, 2009 9:14 am
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Insurance, Social Security & other Assistance
Applying for Social Security, Medicare, Medicaid. Assistance programs and service.
Moderators: jlubin, marieke, cossyh
- 7 Topics
- 48 Posts
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Last post by TMinChatt
on Mon Mar 15, 2010 4:05 pm
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Women's Heath Issuses & Pregnancy
Moderators: jlubin, marieke
- 10 Topics
- 35 Posts
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Last post by marieke
on Fri Nov 13, 2009 3:32 pm
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Research
Discussion about the latest research in TM
Moderators: jlubin, marieke
- 8 Topics
- 18 Posts
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Last post by -Amy-
on Mon Jan 18, 2010 7:10 am
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Relationships & Sexuality
Moderators: jlubin, marieke
- 3 Topics
- 52 Posts
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Last post by yorklass
on Tue Jan 12, 2010 6:32 am
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Neurologist knowledgable about TM, ADEM, NMO
Need help finding one? Have one you want to recommend?
Moderators: jlubin, marieke
- 16 Topics
- 69 Posts
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Last post by zimagirl
on Tue Jan 26, 2010 9:34 am
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Respiratory
breathing related problems.
Moderators: jlubin, marieke, scrubsz
- 0 Topics
- 0 Posts
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No posts
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Acute Disseminated Encephalomyelitis (ADEM)
involves demyelination in the spinal cord and in the brain. The demyelination in the brain is different than a demyelinating attack from MS; the lesions are scattered and do not appear in the same pattern as those from an MS attack.
Moderators: jlubin, marieke
- 37 Topics
- 236 Posts
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Last post by marieke
on Sun Mar 14, 2010 12:49 pm
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Devic's Disease/Neuromyelitis Optica (NMO)
an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin that almost exclusively affect the optic nerves and spinal cord. A rare disorder which resembles multiple sclerosis (MS) in several ways, but requires a different course of treatment for optimal results.
Moderators: jlubin, marieke
- 9 Topics
- 22 Posts
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Last post by kikiana
on Mon Feb 22, 2010 1:26 pm
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Recurrent TM
Recurrent TM involves different and distinct episodes of inflammatory attack in the spinal cord. There is no brain or optic nerve involvement in any of the demyelinating episodes.
Moderators: jlubin, marieke
- 2 Topics
- 64 Posts
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Last post by esterocrazy
on Thu Mar 18, 2010 7:37 am
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Recurrent Optic Neuritis
involves multiple episodes of demyelinating attacks of the optic nerve. There is no brain or spinal cord involvement.
Moderators: jlubin, marieke
- 2 Topics
- 5 Posts
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Last post by doctormyeyes
on Wed Jan 21, 2009 6:52 pm
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Optic Neuritis
Optic Neuritis (ON) is an inflammation, with accompanying demyelination, of the Optic Nerve serving the retina of the eye
Moderators: jlubin, marieke, kmarie1016
- 0 Topics
- 0 Posts
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No posts
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TM/NMO & Rheumatic Disorders
Neuroimmunologic Disorders (TM or NMO) with an underlying Rheumatic Disorder (Lupus, Sjogrens Or Neurosarcoidosis)
Moderators: jlubin, marieke, Sheryl
- 4 Topics
- 39 Posts
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Last post by Linda C
on Sun Oct 25, 2009 6:49 pm
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Myelitis in the News
discuss news articles about people living with myelitis
Moderators: jlubin, marieke
- 1 Topics
- 2 Posts
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Last post by MikeR
on Wed Jan 05, 2005 5:24 pm
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Equipment Swap
Post assistive equipment you no longer need
Moderators: jlubin, marieke
- 1 Topics
- 3 Posts
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Last post by Sew
on Wed Dec 09, 2009 4:15 pm
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2010 Rare Neuroimmunologic Symposium
September 23 – 26, 2010 Dallas, Texas
Moderators: jlubin, marieke
- 1 Topics
- 1 Posts
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Last post by jlubin
on Sat Nov 21, 2009 1:22 pm
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2009 Transverse Myelitis Family Camp
The Transverse Myelitis Family Camp will be held at Victory Junction Gang Camp, from Wednesday, August 12 to Sunday, August 16, 2009. The family camp is for children with TM, ADEM and NMO, brothers and sisters and their parents.
Moderators: jlubin, marieke
- 2 Topics
- 4 Posts
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Last post by lewgray
on Mon Dec 15, 2008 12:47 pm
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2008 Retreat Weekend for teens and young adults
October 24 – 26, 2008 at Victory Junction Gang Camp
Moderators: jlubin, marieke
- 3 Topics
- 5 Posts
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Last post by cchambers
on Mon Feb 23, 2009 9:37 am
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2008 Rare Neuroimmunologic Disorders Symposium
July 16-19, 2008 - Redmond, WA
Moderators: jlubin, marieke
- 4 Topics
- 11 Posts
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Last post by jlubin
on Sun Nov 16, 2008 4:55 pm
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2008 California TM-ADEM-NMO-ON Symposium
the TMA is going to have a one-day symposium in Anaheim on Saturday, February 23rd.
Moderators: jlubin, marieke
- 0 Topics
- 0 Posts
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No posts
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2007 TMA Kids Camp
Summer Camp for Kids with TM, ADEM, NMO or ON and their Families: August 19 – 24, 2007
Moderators: jlubin, marieke
- 2 Topics
- 13 Posts
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Last post by jlubin
on Sat May 26, 2007 8:14 am
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2006 Young Adult’s Autumn Retreat
November 17-19, 2006
Moderators: jlubin, marieke
- 1 Topics
- 3 Posts
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Last post by jlubin
on Mon Aug 28, 2006 8:44 am
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2006 Rare Neuroimmunologic Disorders Symposium
Wednesday, July 19 - Sunday, July 23.
Moderators: jlubin, marieke
- 5 Topics
- 28 Posts
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Last post by Terri J.
on Fri Nov 10, 2006 8:56 pm
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2004 Rare Neuroimmunologic Disorders Symposium
Wednesday, August 18 - Sunday August 22
Moderators: jlubin, marieke
- 1 Topics
- 1 Posts
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Last post by jlubin
on Sun Jul 11, 2004 5:13 pm
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ADEM support group
Moderator: jlubin
- 6 Topics
- 22 Posts
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Last post by wilky50
on Tue Dec 29, 2009 2:35 pm
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Optic Neuritis Support Group
Moderators: jlubin, marieke, kmarie1016
- 0 Topics
- 0 Posts
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No posts
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Myélite pour les francophones
Moderators: jlubin, marieke, Plume
- 1 Topics
- 5 Posts
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Last post by Plume
on Sat Jan 10, 2009 4:45 pm
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Africa
Moderators: jlubin, marieke
Subforum: South African TM Support Group
- 0 Topics
- 0 Posts
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No posts
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Asia
Moderators: jlubin, marieke
Subforum: Sri Lanka TM Support Group
- 0 Topics
- 0 Posts
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No posts
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Australia & South Pacific
Moderator: jlubin
Subforum: New Zealand TM Support Group
- 3 Topics
- 45 Posts
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Last post by Sew
on Sun Dec 27, 2009 10:53 pm
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Central & South America
Moderators: jlubin, marieke
- 0 Topics
- 0 Posts
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No posts
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Europe
Moderators: jlubin, marieke
Subforums: United Kingdom TM Support Groups, Selbsthilfegruppe Deutschland, Romania, Scandinavia TM Support Group
- 38 Topics
- 225 Posts
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Last post by marieblond
on Tue Mar 16, 2010 4:09 pm
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Middle East
Moderator: jlubin
- 0 Topics
- 0 Posts
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No posts
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North America
Moderators: jlubin, marieke
Subforums: Canada TM Support Group, Arkansas TM Support Group, California TM Support Group, Colorado TM Support Group, Connecticut TM Support Group, Florida TM Support Group, Illinois Support Group, Kentucky TM Support Group, Louisiana TM Support Group, Maine TM Support Group, Massachusetts TM Support Group, MD/DC TM Support Group, Michigan TM Support Group, Minnesota TM Support Group, Mississippi TM Support Group, Missouri TM Support Group, New England Tri-State Area Support Group, Central New Jersey TM Support Group, New York TM Support Group, North Carolina TM Support Group, Northwest TM Support Group, Ohio TM Support Group, Oklahoma TM Support Group, TM Support Group of Pennsylvania, Texas Tranverse Myelitis Coalition, Virginia TM Support Group, Central Savannah River Area TM Support Group
- 17 Topics
- 66 Posts
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Last post by cinnyminis
on Sat Mar 06, 2010 6:19 pm
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