Transverse Myelitis Association Forum

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General Discussion
Talk about whatever doesn't fit in other topics.
Moderators: jlubin, marieke

204 Topics

1673 Posts

Last post by Lynne
on Thu Mar 18, 2010 4:52 am
Transverse Myelitis (TM)
Newly diagnosed? Just found others after years of being diagnosed with this rare disorder? Share your story here.
Moderators: jlubin, marieke

176 Topics

2278 Posts

Last post by marieblond
on Wed Mar 17, 2010 3:48 pm
Parents, Spouses & Caregivers

Moderators: jlubin, marieke

4 Topics

14 Posts

Last post by marieke
on Sun Mar 07, 2010 8:34 am
Medication, Treatments & Therapies
Discuss medications you are taking; treatment options (such as plasmapharesis) and therapies (such as aqua therapy, acupuncture, etc)
Moderators: jlubin, marieke

61 Topics

463 Posts

Last post by Sew
on Thu Mar 04, 2010 10:46 am
Pain
Experiences & treatments
Moderators: jlubin, marieke

29 Topics

226 Posts

Last post by Bonniesl
on Fri Mar 05, 2010 1:31 pm
Fatigue
Dealing with fatigue related to TM. Questions, concerns, ideas on how to handle it.
Moderators: jlubin, marieke

2 Topics

6 Posts

Last post by marieke
on Mon Jan 11, 2010 11:41 am
Bowel & Bladder Issues

Moderators: jlubin, marieke

23 Topics

170 Posts

Last post by meanjet
on Fri Jan 01, 2010 9:41 am
Muscle Spasms, weakness or paralysis
discuss symptoms related to arms, legs, torso and neck; solutions and what works for you
Moderators: jlubin, marieke

16 Topics

171 Posts

Last post by marieke
on Sat Jan 09, 2010 9:05 am
Living and Working with TM
Post questions. Make recommendations. Share inspirational achievements.
Moderators: jlubin, marieke

8 Topics

153 Posts

Last post by WildKat
on Sun Feb 07, 2010 9:12 am
Teens with TM
A place for teens and young adults
Moderators: jlubin, marieke

12 Topics

81 Posts

Last post by jlubin
on Thu Mar 04, 2010 9:52 pm
Children with TM
Parents of children with TM
Moderators: jlubin, marieke

6 Topics

17 Posts

Last post by JaydonsMom
on Fri Mar 12, 2010 1:03 pm
Depression
Depression caused by TM
Moderators: jlubin, marieke

7 Topics

82 Posts

Last post by marieke
on Tue Dec 29, 2009 9:14 am
Insurance, Social Security & other Assistance
Applying for Social Security, Medicare, Medicaid. Assistance programs and service.
Moderators: jlubin, marieke, cossyh

7 Topics

48 Posts

Last post by TMinChatt
on Mon Mar 15, 2010 4:05 pm
Women's Heath Issuses & Pregnancy

Moderators: jlubin, marieke

10 Topics

35 Posts

Last post by marieke
on Fri Nov 13, 2009 3:32 pm
Research
Discussion about the latest research in TM
Moderators: jlubin, marieke

8 Topics

18 Posts

Last post by -Amy-
on Mon Jan 18, 2010 7:10 am
Relationships & Sexuality

Moderators: jlubin, marieke

3 Topics

52 Posts

Last post by yorklass
on Tue Jan 12, 2010 6:32 am
Neurologist knowledgable about TM, ADEM, NMO
Need help finding one? Have one you want to recommend?
Moderators: jlubin, marieke

16 Topics

69 Posts

Last post by zimagirl
on Tue Jan 26, 2010 9:34 am
Respiratory
breathing related problems.
Moderators: jlubin, marieke, scrubsz

0 Topics

0 Posts

No posts
Acute Disseminated Encephalomyelitis (ADEM)
involves demyelination in the spinal cord and in the brain. The demyelination in the brain is different than a demyelinating attack from MS; the lesions are scattered and do not appear in the same pattern as those from an MS attack.
Moderators: jlubin, marieke

37 Topics

236 Posts

Last post by marieke
on Sun Mar 14, 2010 12:49 pm
Devic's Disease/Neuromyelitis Optica (NMO)
an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin that almost exclusively affect the optic nerves and spinal cord. A rare disorder which resembles multiple sclerosis (MS) in several ways, but requires a different course of treatment for optimal results.
Moderators: jlubin, marieke

9 Topics

22 Posts

Last post by kikiana
on Mon Feb 22, 2010 1:26 pm
Recurrent TM
Recurrent TM involves different and distinct episodes of inflammatory attack in the spinal cord. There is no brain or optic nerve involvement in any of the demyelinating episodes.
Moderators: jlubin, marieke

2 Topics

64 Posts

Last post by esterocrazy
on Thu Mar 18, 2010 7:37 am
Recurrent Optic Neuritis
involves multiple episodes of demyelinating attacks of the optic nerve. There is no brain or spinal cord involvement.
Moderators: jlubin, marieke

2 Topics

5 Posts

Last post by doctormyeyes
on Wed Jan 21, 2009 6:52 pm
Optic Neuritis
Optic Neuritis (ON) is an inflammation, with accompanying demyelination, of the Optic Nerve serving the retina of the eye
Moderators: jlubin, marieke, kmarie1016

0 Topics

0 Posts

No posts
TM/NMO & Rheumatic Disorders
Neuroimmunologic Disorders (TM or NMO) with an underlying Rheumatic Disorder (Lupus, Sjogrens Or Neurosarcoidosis)
Moderators: jlubin, marieke, Sheryl

4 Topics

39 Posts

Last post by Linda C
on Sun Oct 25, 2009 6:49 pm
Myelitis in the News
discuss news articles about people living with myelitis
Moderators: jlubin, marieke

1 Topics

2 Posts

Last post by MikeR
on Wed Jan 05, 2005 5:24 pm
Equipment Swap
Post assistive equipment you no longer need
Moderators: jlubin, marieke

1 Topics

3 Posts

Last post by Sew
on Wed Dec 09, 2009 4:15 pm

Symposia and Workshop Information

Topics

Posts

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2010 Rare Neuroimmunologic Symposium
September 23 – 26, 2010 Dallas, Texas
Moderators: jlubin, marieke

1 Topics

1 Posts

Last post by jlubin
on Sat Nov 21, 2009 1:22 pm
2009 Transverse Myelitis Family Camp
The Transverse Myelitis Family Camp will be held at Victory Junction Gang Camp, from Wednesday, August 12 to Sunday, August 16, 2009. The family camp is for children with TM, ADEM and NMO, brothers and sisters and their parents.
Moderators: jlubin, marieke

2 Topics

4 Posts

Last post by lewgray
on Mon Dec 15, 2008 12:47 pm
2008 Retreat Weekend for teens and young adults
October 24 – 26, 2008 at Victory Junction Gang Camp
Moderators: jlubin, marieke

3 Topics

5 Posts

Last post by cchambers
on Mon Feb 23, 2009 9:37 am
2008 Rare Neuroimmunologic Disorders Symposium
July 16-19, 2008 - Redmond, WA
Moderators: jlubin, marieke

4 Topics

11 Posts

Last post by jlubin
on Sun Nov 16, 2008 4:55 pm
2008 California TM-ADEM-NMO-ON Symposium
the TMA is going to have a one-day symposium in Anaheim on Saturday, February 23rd.
Moderators: jlubin, marieke

0 Topics

0 Posts

No posts
2007 TMA Kids Camp
Summer Camp for Kids with TM, ADEM, NMO or ON and their Families: August 19 – 24, 2007
Moderators: jlubin, marieke

2 Topics

13 Posts

Last post by jlubin
on Sat May 26, 2007 8:14 am
2006 Young Adult’s Autumn Retreat
November 17-19, 2006
Moderators: jlubin, marieke

1 Topics

3 Posts

Last post by jlubin
on Mon Aug 28, 2006 8:44 am
2006 Rare Neuroimmunologic Disorders Symposium
Wednesday, July 19 - Sunday, July 23.
Moderators: jlubin, marieke

5 Topics

28 Posts

Last post by Terri J.
on Fri Nov 10, 2006 8:56 pm
2004 Rare Neuroimmunologic Disorders Symposium
Wednesday, August 18 - Sunday August 22
Moderators: jlubin, marieke

1 Topics

1 Posts

Last post by jlubin
on Sun Jul 11, 2004 5:13 pm

Fund Raising Events

Topics

Posts

Last post

Fund Raising Discussion
Talk about fund raisings Events
Moderators: jlubin, marieke

6 Topics

19 Posts

Last post by HelpProjectRestore
on Sat Apr 18, 2009 10:06 am
Reading for Rachel
A program to encourage children to read while helping raise funds to find a cure for Transverse Myelitis
Moderator: jlubin

1 Topics

1 Posts

Last post by gregoryers
on Wed Apr 01, 2009 8:12 am
Ride the Rockies for Transverse Myelitis
404 Miles · June 15 - 21, 2003, riding in this event to raise research dollars for TM and to raise awareness for the adaptable sport of handcycling to promote health and fitness for people with disabilities.
Moderators: jlubin, smiller

7 Topics

12 Posts

Last post by Scooter-girl
on Mon Jun 20, 2005 2:26 pm

Local/Regional Support Groups

Topics

Posts

Last post

ADEM support group

Moderator: jlubin

6 Topics

22 Posts

Last post by wilky50
on Tue Dec 29, 2009 2:35 pm
Optic Neuritis Support Group

Moderators: jlubin, marieke, kmarie1016

0 Topics

0 Posts

No posts
Myélite pour les francophones

Moderators: jlubin, marieke, Plume

1 Topics

5 Posts

Last post by Plume
on Sat Jan 10, 2009 4:45 pm
Africa

Moderators: jlubin, marieke
Subforum: South African TM Support Group

0 Topics

0 Posts

No posts
Asia

Moderators: jlubin, marieke
Subforum: Sri Lanka TM Support Group

0 Topics

0 Posts

No posts
Australia & South Pacific

Moderator: jlubin
Subforum: New Zealand TM Support Group

3 Topics

45 Posts

Last post by Sew
on Sun Dec 27, 2009 10:53 pm
Central & South America

Moderators: jlubin, marieke

0 Topics

0 Posts

No posts
Europe

Moderators: jlubin, marieke
Subforums: United Kingdom TM Support Groups, Selbsthilfegruppe Deutschland, Romania, Scandinavia TM Support Group

38 Topics

225 Posts

Last post by marieblond
on Tue Mar 16, 2010 4:09 pm
Middle East

Moderator: jlubin

0 Topics

0 Posts

No posts
North America

Moderators: jlubin, marieke
Subforums: Canada TM Support Group, Arkansas TM Support Group, California TM Support Group, Colorado TM Support Group, Connecticut TM Support Group, Florida TM Support Group, Illinois Support Group, Kentucky TM Support Group, Louisiana TM Support Group, Maine TM Support Group, Massachusetts TM Support Group, MD/DC TM Support Group, Michigan TM Support Group, Minnesota TM Support Group, Mississippi TM Support Group, Missouri TM Support Group, New England Tri-State Area Support Group, Central New Jersey TM Support Group, New York TM Support Group, North Carolina TM Support Group, Northwest TM Support Group, Ohio TM Support Group, Oklahoma TM Support Group, TM Support Group of Pennsylvania, Texas Tranverse Myelitis Coalition, Virginia TM Support Group, Central Savannah River Area TM Support Group

17 Topics

66 Posts

Last post by cinnyminis
on Sat Mar 06, 2010 6:19 pm

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